100:
A 2011 study of
European e-patients found that they tended to be "inquisitive and autonomous" and that they noted that the number of e-patients in Europe appeared to be rising. A 2012 study found that e-patients uploading videos about their health experienced a loss of privacy, but also positive
36:
and other digital tools. The term encompasses those who seek guidance for their own ailments, and the friends and family members who research on their behalf. E-patients report two effects of their health research: "better health information and services, and different, but not always better,
843:"Patient Participation at Health Care Conferences: Engaged Patients Increase Information Flow, Expand Propagation, and Deepen Engagement in the Conversation of Tweets Compared to Physicians or Researchers"
1337:
841:
Utengen, Audun; Rouholiman, Dara; Gamble, Jamison G; III, Francisco Jose
Grajales; Pradhan, Nisha; Staley, Alicia C; Bernstein, Liza; Young, Sean D; Clauson, Kevin A (2017).
284:"Fox, Susannah; Fallows, Deborah. 2003. Health searches and email have become more commonplace, but there is room for improvement in searches and overall Internet access"
1497:
109:
found that when e-patients are included in health care conferences, they increase information flow, expand propagation, and deepen engagement in the conversation of
283:
1395:
131:
1263:
1150:
1187:
892:
Salmi, Liz; Brudnicki, Selina; Isono, Maho; Riggare, Sara; Rodriquez, Cecilia; Schaper, Louise K.; Walker, Jan; Delbanco, Tom (2020-09-01).
80:"The net friendliness of clinicians and provider organizations—as rated by the e-patients they serve—is becoming an important new aspect of
409:
1009:
87:
According to one study, the advent of patients as partners is one of the most important cultural medical revolutions of the past century.
1548:
894:"Six countries, six individuals: resourceful patients navigating medical records in Australia, Canada, Chile, Japan, Sweden and the USA"
328:
63:
A growing number of people say the internet played a crucial or important role as they helped another person cope with a major illness.
1415:
1423:
1164:
1256:
723:
Santana, Silvina; Lausen, Berthold; Bujnowska-Fedak, Maria; Chronaki, Catherine E.; Prokosch, Hans-Ulrich; Wynn, Rolf (2011-04-16).
1216:
90:
In order to understand the impact of the e-patient, clinicians will likely need to move beyond "pre-internet medical constructs".
1365:
194:
1031:
290:
782:
Gómez-Zúñiga, Beni; Fernandez-Luque, Luis; Pousada, Modesta; Hernández-Encuentra, Eulà lia; Armayones, Manuel (2012-04-25).
1584:
1249:
96:
must adapt to take the e-patient into account, and to prepare students for medical practice that includes the e-patient.
1589:
1400:
214:
1147:
1599:
1472:
668:"The First Generation of E-Patients: These New Medical Colleagues Could Provide Sustainable Healthcare Solutions"
1428:
1332:
952:
1291:
167:
106:
355:"What E-patients Want From the Doctor-Patient Relationship: Content Analysis of Posts on Discussion Boards"
52:" but has also been used to refer to other terms, such as "equipped", "enabled", "empowered" and "expert".
1553:
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406:
70:
underestimated the benefits and overestimated the risks of online health resources for patients.
1013:
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315:
Medicine 2.0: Social
Networking, Collaboration, Participation, Apomediation, and Openness
1522:
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1467:
1462:
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1309:
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573:"Analysis of cases of harm associated with use of health information on the internet"
74:
465:
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1040:
784:"ePatients on YouTube: Analysis of Four Experiences From the Patients' Perspective"
725:"Informed citizen and empowered citizen in health: results from an European survey"
1183:, an aggregate of e-patient online communities for knowledge-sharing about cancer.
497:
485:
Partnership: The
Canadian Journal of Library and Information Practice and Research
480:
614:"A Reader and Author Respond to 'ePatients: Engaging Patients in Their Own Care'"
182:
176:
1502:
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910:
25:
1105:"How Cancer Survivors Provide Support on Cancer-Related Internet Mailing Lists"
893:
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975:"The Internet and primary care physicians: coping with different expectations"
974:
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522:"Are Physicians Ready for Patients With Internet-Based Health Information?"
481:"Empowering the physician-patient relationship: The effect of the Internet"
457:
393:
269:
1121:
1076:
538:
33:
1010:"Today's E-Patients: Hunters and Gatherers of Health Information Online"
407:
Finding
Answers Online in Sickness and in Health, 5/2/2006, Pew Internet
170:
and the e-Patients
Scholars Working Group, Swedish patient and engineer
1457:
1390:
204:
199:
29:
1202:
Booklet by the
Federal Trade Commission, a guide to health information
859:
800:
374:
1433:
426:
Eysenbach G (2003). "The impact of the
Internet on cancer outcomes".
40:
E-patients are active in their care and demonstrate the power of the
185:", meaning "lead user patient" or "lead patient", in February 2016.
1217:"A Social Network for Crohn's Disease | MIT Technology Review"
244:"'I Found it on the Internet': Preparing for the e-patient in Oman"
1232:
314:
117:
and researchers while only making up 1.4% of the stakeholder mix.
55:
The current state of knowledge on the impact of e-patients on the
520:
Ahmad F, Hudak PL, Bercovitz K, Hollenberg E, Levinson W (2006).
1161:
presentation at the
Medical Library Association, October 7, 2009
1008:
Susannah Fox; Pew
Internet; American Life Project (2004-09-27).
1245:
1168:
1158:
1060:"How New Subscribers Use Cancer-Related Online Mailing Lists"
1103:
Meier A, Lyons EJ, Frydman G, Forlenza M, Rimer BK (2007).
1058:
Rimer BK, Lyons EJ, Ribisl KM, et al. (July 2005).
1234:
ePatient 2015: 15 Surprising Trends Changing Healthcare
353:
Hewitt-Taylor, Jaqui; Bond, Carol S (8 November 2012).
121:
Non-English translations and adaptations of "e-patient"
48:/ Medicine 2.0. model of care. The "e" can stand for "
571:
Crocco AG, Villasis-Keever M, Jadad AR (June 2002).
1541:
1447:
1414:
1351:
1338:
Health Insurance Portability and Accountability Act
1308:
1279:
1173:
953:"e-patients: How they can help us heal health care"
1033:e-Patients: How They Can Help Us Heal Health Care
1165:E-patients With a Disability or Chronic Disease
32:that impact them and their families, using the
1396:Participative decision-making in organizations
612:Feder, Judith; Sands, Daniel Z. (2008-02-25).
166:Inspired by the seminal work on e-patients by
150:means study, investigation and research" and "
132:International University of Health and Welfare
1257:
1174:Association of Cancer Online Resources (ACOR)
666:Ferguson, Tom; Frydman, Gilles (2004-05-15).
8:
59:and the quality of care received indicates:
661:
659:
657:
242:Masters, K.; Ng'Ambi, D.; Todd, G. (2010).
28:, primarily by gathering information about
1264:
1250:
1242:
979:The American Journal of Clinical Nutrition
1130:
1120:
1085:
1075:
990:
927:
909:
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699:
637:
588:
547:
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496:
439:
383:
373:
259:
248:Sultan Qaboos University Medical Journal
1231:Bhargava, Rohit; Johnmar, Fard (2013).
231:
1169:Pew Internet and American Life Project
1159:Pew Internet and American Life Project
331:. Blog.kruresearch.com. Archived from
1424:Health information on Knowledge (XXG)
237:
235:
130:According to Maho Isono, PhD, at the
77:are an important healthcare resource.
7:
1206:Dave deBronkart: Meet e-Patient Dave
1109:Journal of Medical Internet Research
1064:Journal of Medical Internet Research
847:Journal of Medical Internet Research
526:Journal of Medical Internet Research
362:Journal of Medical Internet Research
158:themselves or patients themselves."
24:who participates fully in their own
428:CA: A Cancer Journal for Clinicians
317:. J Med Internet Res 2008;10(3):e22
37:relationships with their doctors."
1416:Health information on the Internet
14:
1186:Haig, Scott (November 8, 2007).
329:"What do you mean, 'e-patient'?"
1549:Open-source healthcare software
1188:"When the patient is a Googler"
973:van Woerkum CM (1 April 2003).
105:. A later 2017 study utilizing
154:refers to interested persons,
1:
498:10.21083/partnership.v2i1.244
181:coined a new Swedish word, "
138:, Japan, the term closest to
618:Medscape Journal of Medicine
1366:Doctor–patient relationship
1273:Telemedicine and telehealth
911:10.1136/bmjopen-2020-037016
195:Doctor–patient relationship
1616:
1401:Patient Activation Measure
215:Treatment decision support
1473:Remote patient monitoring
1148:The rise of the e-patient
684:10.1136/bmj.328.7449.1148
450:10.3322/canjclin.53.6.356
1429:Online patient education
1333:Electronic health record
985:(4 Suppl): 1016S–1018S.
590:10.1001/jama.287.21.2869
992:10.1093/ajcn/77.4.1016S
742:10.1186/1471-2296-12-20
672:British Medical Journal
107:social network analysis
1554:Patient opinion leader
1406:Shared decision-making
1343:Personal health record
1219:. Technologyreview.com
1157:, Lee Rainie from the
1030:Ferguson, Tom (2007).
210:Patient opinion leader
113:when compared to both
42:participatory medicine
1386:Knowledge translation
1353:Patient participation
1559:Research participant
1122:10.2196/jmir.9.2.e12
1077:10.2196/jmir.7.3.e32
539:10.2196/jmir.8.3.e22
1585:Medical terminology
1280:Background concepts
729:BMC Family Practice
678:(7449): 1148–1149.
479:Jacobson P (2007).
82:health care quality
1590:Health informatics
1533:Telerehabilitation
1287:Health informatics
1179:2008-05-01 at the
1153:2009-11-30 at the
412:2008-03-06 at the
30:medical conditions
1572:
1571:
1508:Teleophthalmology
1498:Telemental health
1483:Tele-epidemiology
1328:De-identification
1300:Telecommunication
860:10.2196/jmir.8049
801:10.2196/med2.2039
375:10.2196/jmir.2068
94:Medical education
57:healthcare system
1607:
1600:Patient advocacy
1381:Health education
1266:
1259:
1252:
1243:
1238:
1227:
1225:
1224:
1215:Greenwald, Ted.
1144:
1134:
1124:
1099:
1089:
1079:
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1052:
1051:
1045:
1039:. Archived from
1038:
1024:
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1021:
1012:. Archived from
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289:. Archived from
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156:disabled persons
1615:
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1564:Virtual patient
1537:
1493:Teledermatology
1443:
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1347:
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1270:
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1220:
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1181:Wayback Machine
1155:Wayback Machine
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1019:
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951:Ferguson, Tom.
950:
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441:10.1.1.526.4309
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414:Wayback Machine
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220:Virtual patient
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142:in Japanese is
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73:Medical online
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1523:Telepsychiatry
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1500:
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1478:Tele-audiology
1475:
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1468:Remote therapy
1465:
1463:Remote surgery
1460:
1454:
1452:
1450:subspecialties
1445:
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1442:
1441:
1439:PubMed Central
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1318:Admission note
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1310:Medical record
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967:External links
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144:tojisha-kenkyu
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103:social support
101:benefits from
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75:support groups
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1542:Roles to play
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1528:Teleradiology
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1513:Telepathology
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1488:Teledentistry
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1361:Decision aids
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1046:on 2008-07-23
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1016:on 2007-05-13
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434:(6): 356–71.
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335:on 2013-08-25
334:
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1518:Telepharmacy
1370:
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1233:
1221:. Retrieved
1191:
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1063:
1048:. Retrieved
1041:the original
1032:
1018:. Retrieved
1014:the original
982:
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850:
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788:Medicine 2.0
787:
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365:
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337:. Retrieved
333:the original
322:
313:Eysenbach G
309:
298:. Retrieved
291:the original
278:
251:
247:
183:spetspatient
172:Sara Riggare
168:Tom Ferguson
165:
151:
147:
143:
139:
129:
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26:medical care
17:
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