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Epilepsy Foundation

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59:, find a cure and overcome the challenges created by epilepsy through efforts including education, advocacy and research to accelerate ideas into therapies". The new mission of the Foundation is "To Lead The Fight To Overcome The Challenges Of Living With Epilepsy And To Accelerate Therapies To Stop Seizures, Find Cures, And Save Lives." Programs included educational, counseling, referral, and employment assistance. In addition the EFA has advisory and youth programs, training grants and programs. 236:(FDA) in 1999 that there was a problem, but the FDA decided there was no evidence. In 2006, foundation leaders convened a committee of medical experts, and its own experts also found no evidence. Nonetheless, they recommended that doctors be required to give permission to switch their patients' prescriptions to generic drugs. Gary Buehler, at the time the director of the FDA's office of generic drugs, said, "The only way you can somehow pin this down is to do a good study." 54:
The Epilepsy Foundation came into existence as the result of a merger of the Epilepsy Association of America and the Epilepsy Foundation in 1967. It has since been joined by the National Epilepsy League. In December 2012, it merged with The Epilepsy Therapy Project. The mission of the Foundation in
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and seizure disorders. The foundation was established in 1968 and now has a network of 59 affiliates. The foundation's programs aim to "ensure that people with seizures are able to participate in all life experiences; and to prevent, control and cure epilepsy through research, education, advocacy
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suggest that the perpetrators are Internet users who merely remained anonymous in the literal sense, and thus had no affiliation with the larger anti-Scientology efforts attributed to Anonymous. During an interview with CNN, Scientologist Tommy Davis accused Anonymous of hacking into the Epilepsy
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contended the FBI said that it "found nothing to connect this group Anonymous (with these actions)," and that it also has "no reason to believe that these charges will be leveled against this group." The response was that the matter was on the hands of local law enforcement and that there were
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for state laws in 25 states that would prevent pharmacists from substituting generic epilepsy drugs for brand-name drugs unless the pharmacist had written consent of the physician or patient. The pharmaceutical industry was also lobbying state legislatures for the change, and working with the
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reported that the administrators of 7chan.org had posted an open letter claiming that the attacks had been carried out by the Church of Scientology "to ruin the public opinion of Anonymous, to lessen the effect of the lawful protests against their virulent organization" under the Church's
275: 121:, now called Epilepsy Society was also subjected to an identical attack. It stated that "apparent members of Anonymous" had denied responsibility for both attacks and posted that it had been the Church of Scientology who carried them out. 150:
reported that when the attack began, posts referenced multiple groups, including Anonymous. The report attributes the attack to a group named "The Internet Hate Machine" (a reference to the
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Generic drug substitution is significant, because four major branded drugs, with that generated $ 5 billion revenue, went off-patent in 2010. (At the time the five best-selling drugs were
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The pharmaceutical industry spent $ 8.8 million in state campaign contributions in 2006. In its annual report, the Epilepsy Foundation reported that it got $ 500,000 to $ 999,999 from
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that has been described as a stronghold for Anonymous. The thread, like all old threads eventually do on these types of imageboards, has since cycled to deletion.
233: 229:.) Pharmacists can substitute generics, because every generic drug, in order to be approved, has to demonstrate that it is equivalent to the branded drug. 154:), who claim to be part of Anonymous, but are not the same faction that are involved in the campaign against Scientology. Some Anonymous participants of 232:
The Epilepsy Foundation received anecdotal reports of patients experiencing seizures and side effects after switching drugs, and tried to convince the
857: 940: 101:, circumstantial evidence suggested that the attack was perpetrated by Anonymous users, with the initial attack posts on the epilepsy forum blaming 528: 771: 276:"Epilepsy Foundation And Epilepsy Therapy Project Finalize Merger To Create Strong, Unified Organization To Support People With Epilepsy" 904: 565: 834: 482: 206:, which gave $ 25,000 to $ 49,999. The Foundation denied that pharmaceutical funding had anything to do with its support of the laws. 160: 419: 919: 791: 743: 862: 996: 665: 472:
Pill push: Industry fights switch to generics for epilepsy, big drug makers help patient groups lobby; more attention to states
198:. At the time of publication, representatives of four pharmaceutical companies sat on the Epilepsy Foundation's board, as did 879: 852: 558: 118: 914: 829: 796: 105:. Members of the epilepsy forum claimed they had found a thread in which the attack was being planned at 7chan.org, an 884: 444: 382: 801: 952: 748: 713: 678: 129: 94: 323: 728: 708: 648: 786: 733: 497: 969: 763: 753: 673: 624: 195: 924: 536: 191: 174: 113: 844: 821: 137: 354: 159:
Foundation website to make it display imagery intended to cause epileptic seizures. Interviewer
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operations to frame and discredit groups or peoples it disagrees with such as
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by Joe Mantone, Wall Street Journal Health Blog, July 13, 2007, 6:53 am
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report in 2006, the foundation, with its local affiliates, was
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code and flashing computer animations were posted to trigger
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support forum run by the Epilepsy Foundation of America.
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Scientology vs Anonymous, Critics take it to the web
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reported that the forum at the United Kingdom-based
933: 897: 843: 820: 762: 696: 687: 664: 633: 592: 132:policy. The church has previously been involved in 449:. CNN. Event occurs at 0:50–1:38. Archived from 317: 315: 416:"Targeted physical attack takes aim at Epilepsy" 355:"Hackers Assault Epilepsy Patients via Computer" 348: 346: 344: 409: 407: 566: 324:"Anonymous attack targets epilepsy sufferers" 8: 151: 95:photosensitive or pattern-sensitive epilepsy 693: 573: 559: 551: 190:, and $ 100,000 to $ 499,999 from each of 46:, dedicated to the welfare of people with 941:Citizens United for Research in Epilepsy 439: 437: 245: 388:. Underground Networks. Archived from 7: 858:Dentatorubral–pallidoluysian atrophy 905:Sudden unexpected death in epilepsy 835:Complex partial status epilepticus 27:Non-profit organization in the USA 25: 920:Psychogenic non-epileptic seizure 792:Benign familial neonatal seizures 744:Sleep-related hypermotor epilepsy 418:. The Tech Herald. Archived from 234:U.S. Food and Drug Administration 381:Michael Santo (March 29, 2008). 353:Kevin Poulsen (March 28, 2008). 322:Andrew Ramadge (April 1, 2008). 55:2012 was to "stop seizures and 880:Early myoclonic encephalopathy 853:Progressive myoclonus epilepsy 414:Steve Ragan (March 31, 2008). 36:Epilepsy Foundation of America 18:Epilepsy Foundation of America 1: 515:"Epilepsy Foundation website" 119:National Society for Epilepsy 830:Epilepsia partialis continua 885:Juvenile myoclonic epilepsy 863:Unverricht–Lundborg disease 1013: 802:Myoclonic astatic epilepsy 498:Big Pharma States Its Case 953:Epilepsy Action Australia 915:Landau–Kleffner syndrome 749:Panayiotopoulos syndrome 164:ongoing investigations. 73:reported that "Internet 67:On March 28, 2008, 797:Lennox–Gastaut syndrome 679:Epilepsy and employment 476:The Wall Street Journal 152:KTTV Fox 11 news report 997:Epilepsy organizations 729:Temporal lobe epilepsy 649:Electroencephalography 298:"About the Foundation" 734:Frontal lobe epilepsy 529:"Epilepsy Foundation" 196:Johnson & Johnson 970:Epilepsy Research UK 754:Vertiginous epilepsy 674:Epilepsy and driving 625:Epilepsy in children 474:, Sarah Rubenstein, 958:Epilepsy Foundation 925:Epilepsy in animals 605:Aura (warning sign) 278:. December 26, 2012 192:Abbott Laboratories 175:Wall Street Journal 63:2008 forum invasion 32:Epilepsy Foundation 845:Myoclonic epilepsy 822:Status epilepticus 485:2011-07-15 at the 138:Operation Freakout 984: 983: 898:Related disorders 893: 892: 739:Rolandic epilepsy 478:, July 13, 2007. 392:on March 31, 2008 156:Project Chanology 16:(Redirected from 1004: 975:Epilepsy Society 964:Epilepsy Outlook 807:Epileptic spasms 719:Gelastic seizure 694: 620:Neonatal seizure 575: 568: 561: 552: 547: 545: 544: 524: 522: 521: 501: 495: 489: 469: 463: 462: 460: 458: 441: 432: 431: 429: 427: 422:on April 7, 2008 411: 402: 401: 399: 397: 378: 372: 371: 369: 367: 350: 339: 338: 336: 334: 319: 310: 309: 307: 305: 294: 288: 287: 285: 283: 272: 266: 265: 263: 261: 250: 21: 1012: 1011: 1007: 1006: 1005: 1003: 1002: 1001: 987: 986: 985: 980: 947:Epilepsy Action 929: 889: 839: 816: 812:Febrile seizure 777:Absence seizure 758: 714:Complex partial 683: 666:Personal issues 660: 645:Investigations 641:Anticonvulsants 629: 615:Epileptogenesis 610:Postictal state 588: 579: 542: 540: 533:Charity Reports 527: 519: 517: 513: 510: 505: 504: 496: 492: 487:Wayback Machine 470: 466: 456: 454: 443: 442: 435: 425: 423: 413: 412: 405: 395: 393: 380: 379: 375: 365: 363: 352: 351: 342: 332: 330: 321: 320: 313: 303: 301: 296: 295: 291: 281: 279: 274: 273: 269: 259: 257: 252: 251: 247: 242: 188:GlaxoSmithKline 172:According to a 170: 148:The Tech Herald 97:. According to 93:in people with 65: 51:and services." 44:Bowie, Maryland 28: 23: 22: 15: 12: 11: 5: 1010: 1008: 1000: 999: 989: 988: 982: 981: 979: 978: 972: 967: 961: 955: 950: 944: 937: 935: 931: 930: 928: 927: 922: 917: 912: 910:Todd's paresis 907: 901: 899: 895: 894: 891: 890: 888: 887: 882: 877: 876: 875: 873:Lafora disease 870: 868:MERRF syndrome 865: 860: 849: 847: 841: 840: 838: 837: 832: 826: 824: 818: 817: 815: 814: 809: 804: 799: 794: 789: 784: 782:Atonic seizure 779: 774: 768: 766: 760: 759: 757: 756: 751: 746: 741: 736: 731: 726: 722: 721: 716: 711: 709:Simple partial 706: 702: 700: 691: 685: 684: 682: 681: 676: 670: 668: 662: 661: 659: 658: 656:Epileptologist 653: 652: 651: 643: 637: 635: 631: 630: 628: 627: 622: 617: 612: 607: 602: 596: 594: 590: 589: 580: 578: 577: 570: 563: 555: 549: 548: 525: 509: 508:External links 506: 503: 502: 490: 480:Free full text 464: 433: 403: 373: 340: 311: 300:. June 4, 2019 289: 267: 256:. June 4, 2019 244: 243: 241: 238: 169: 166: 89:headaches and 64: 61: 26: 24: 14: 13: 10: 9: 6: 4: 3: 2: 1009: 998: 995: 994: 992: 976: 973: 971: 968: 965: 962: 959: 956: 954: 951: 948: 945: 942: 939: 938: 936: 934:Organizations 932: 926: 923: 921: 918: 916: 913: 911: 908: 906: 903: 902: 900: 896: 886: 883: 881: 878: 874: 871: 869: 866: 864: 861: 859: 856: 855: 854: 851: 850: 848: 846: 842: 836: 833: 831: 828: 827: 825: 823: 819: 813: 810: 808: 805: 803: 800: 798: 795: 793: 790: 788: 785: 783: 780: 778: 775: 773: 770: 769: 767: 765: 761: 755: 752: 750: 747: 745: 742: 740: 737: 735: 732: 730: 727: 724: 723: 720: 717: 715: 712: 710: 707: 704: 703: 701: 699: 695: 692: 690: 689:Seizure types 686: 680: 677: 675: 672: 671: 669: 667: 663: 657: 654: 650: 647: 646: 644: 642: 639: 638: 636: 632: 626: 623: 621: 618: 616: 613: 611: 608: 606: 603: 601: 600:Seizure types 598: 597: 595: 591: 587: 583: 576: 571: 569: 564: 562: 557: 556: 553: 539:on 2006-11-29 538: 534: 530: 526: 516: 512: 511: 507: 499: 494: 491: 488: 484: 481: 477: 473: 468: 465: 453:on 2008-05-13 452: 448: 447: 440: 438: 434: 421: 417: 410: 408: 404: 391: 387: 384: 377: 374: 362: 361: 356: 349: 347: 345: 341: 329: 325: 318: 316: 312: 299: 293: 290: 277: 271: 268: 255: 249: 246: 239: 237: 235: 230: 228: 224: 220: 216: 212: 207: 205: 201: 197: 193: 189: 184: 181: 177: 176: 167: 165: 162: 157: 153: 149: 145: 143: 139: 135: 131: 126: 125: 120: 116: 115: 110: 108: 104: 103:eBaum's World 100: 96: 92: 88: 84: 80: 76: 72: 71: 62: 60: 58: 52: 49: 45: 41: 37: 33: 19: 957: 772:Tonic–clonic 541:. 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Retrieved 254:"Contact Us" 248: 231: 208: 200:Billy Tauzin 185: 183:foundation. 173: 171: 161:John Roberts 147: 146: 142:Gabe Cazares 122: 114:RealTechNews 112: 111: 98: 68: 66: 53: 39: 35: 31: 29: 764:Generalised 328:News.com.au 168:Controversy 124:News.com.au 787:Automatism 634:Management 543:2006-11-18 520:2021-04-06 360:Wired News 240:References 202:, head of 134:false flag 107:imageboard 99:Wired News 83:JavaScript 70:Wired News 282:April 10, 130:fair game 991:Category 725:Epilepsy 705:Seizures 586:epilepsy 582:Seizures 483:Archived 457:June 27, 426:April 2, 396:April 1, 366:April 1, 333:April 1, 304:April 6, 260:April 6, 227:Depakote 215:Lamictal 180:lobbying 91:seizures 87:migraine 79:epilepsy 75:griefers 48:epilepsy 211:Topamax 34:, also 593:Basics 223:Keppra 219:Lyrica 698:Focal 204:PhRMA 57:SUDEP 977:(UK) 966:(UK) 960:(US) 949:(UK) 943:(US) 584:and 459:2008 428:2008 398:2008 368:2008 335:2008 306:2021 284:2013 262:2021 225:and 194:and 140:and 30:The 40:EFA 993:: 531:. 436:^ 406:^ 385:. 357:. 343:^ 326:. 314:^ 221:, 217:, 213:, 144:. 574:e 567:t 560:v 546:. 523:. 461:. 430:. 400:. 370:. 337:. 308:. 286:. 264:. 38:( 20:)

Index

Epilepsy Foundation of America
Bowie, Maryland
epilepsy
SUDEP
Wired News
griefers
epilepsy
JavaScript
migraine
seizures
photosensitive or pattern-sensitive epilepsy
eBaum's World
imageboard
RealTechNews
National Society for Epilepsy
News.com.au
fair game
false flag
Operation Freakout
Gabe Cazares
KTTV Fox 11 news report
Project Chanology
John Roberts
Wall Street Journal
lobbying
GlaxoSmithKline
Abbott Laboratories
Johnson & Johnson
Billy Tauzin
PhRMA

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