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238:'s December 2021 signing into law of the Accelerating Access to Critical Therapies for ALS Act, while acknowledging the contribution, and detailing the story, of Wallach and Abrevaya. This bill, which Wallach co-authored with others, provides expanded access to medications being studied in clinical trials to those who have been previously unable to participate. Also, this bill authorizes $ 100 million a year for five years to increase ALS research.
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In
January 2019, Wallach and Abrevaya launched I AM ALS. In April of the same year, Wallach testified before Congress, advocating for ALS patients and research funding while sharing "what it's like to live with a fatal diagnosis." Wallach argued that Congressional committees rarely heard from people
217:
Wallach was diagnosed with ALS in 2017 at the age of 36 on the same day he and his wife brought home their second daughter from the hospital. Originally visiting the doctor for a persistent cough, Wallach had also mentioned experiencing muscle tremors and weakness in his left hand and was told he
298:. The film follows Wallach and Abrevaya as they travel across the US gathering information on the healthcare system's handling of rare and fatal diseases, and their work that led to increased federal funding, expanded access to therapies, and increased awareness of
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Wallach and his wife, Sandra
Abrevaya, have co-founded two organizations focused on ALS. In 2019, they launched I AM ALS, a non-profit seeking to find a cure for ALS through funding and expanding access to research. In 2022 they founded Synapticure, a
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The ALS Disability
Insurance Access Act was initially introduced in 2017 to shorten the five-month wait time for ALS patients to access disability benefits. A network of non-profits, including I AM ALS, advocated to move the bill forward, which the
272:. A network of non-profits, including I AM ALS, submitted more than 50,000 signatures to the FDA calling for approval of the drug. In September 2022, the FDA approved it, making it the first new ALS drug in five years.
185:, where he met his wife, Sandra Abrevaya. He joined the presidential campaign in 2007 as its deputy political director for the New Hampshire primary. After the campaign, he worked at a law firm before joining the
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144:(ALS) research and patient advocate. He became known for his activism after being diagnosed with ALS in 2017. Since then, Wallach has founded a nonprofit, I AM ALS, and a telemedicine company, Synapticure.
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In
December 2022, Dan Tate, an I AM ALS Board Member, delivered an I AM ALS petition calling for the FDA to hold an Advisory Committee meeting on the drug NurOwn. A July 2023 story by
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In 2019, Wallach and
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diagnosed with ALS "because ALS is a relentless churn. We diagnose. We die, quickly. We don't have time to advocate."
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567:"To help patients like him, former Obama staffer helps pass law for ALS patients to get quicker access to drugs"
539:"'I'm going to prove you wrong': How a D.C. power couple used an ALS diagnosis to create a political juggernaut"
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Remarks by
President Biden at Signing of H.R. 3537, the "Accelerating Access to Critical Therapies for ALS Act"
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860:"SXSW 2023: No Ordinary Campaign, The Arc of Oblivion, Join or Die | Festivals & Awards | Roger Ebert"
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Wallach and
Abrevaya were amongst those who testified at Congressional hearings advocating to have the
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described the work of
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counsel's office in 2011. From there, Wallach became a federal criminal prosecutor in the
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Wallach's testimony spurred a legislative process that eventually led to
President
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809:"Sandra Abrevaya and Brian Wallach deliver powerful speech at the DNC convention"
655:"ALS Disability Insurance Access Act Signed into Law - Les Turner ALS Foundation"
474:"Former White House staffer dedicates life to helping others after ALS diagnosis"
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313:. The film received the festival's Audience Choice Award: Best Documentary.
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791:"He was diagnosed with ALS. Then they changed the face of medical advocacy"
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710:"F.D.A. Approves A.L.S. Treatment Despite Questions About Effectiveness"
309:, which featured a panel discussion with the film's executive producer,
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After law school, Wallach worked on the first presidential campaign for
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165:, where he participated in track and field. Wallach later received his
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910:"Winners Announced for Audience Choice Awards, Presented by Xfinity!"
625:"Accelerating Access to Critical Therapies for ALS Act – ACT for ALS"
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Summers, Juana; Dorning, Courtney; Burnett, Elena (June 30, 2023).
744:"FDA Approves First ALS Drug in 5 Years After Please from Patients"
503:"My Friend Was Struck by ALS. To Fight Back, He Built a Movement"
140:(born October 9, 1980) is an American businessman, lawyer, and
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834:"ALS advocates at DNC: Harris 'knows the promise of science'"
222:. After his diagnosis, Wallach was given six months to live.
772:"FDA advisers recommend approval of controversial ALS drug"
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In June 2022, Wallach threw out the first pitch before a
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415:"He Was Given 6 Months to Live. Then He Changed D.C."
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company that provides care to those living with ALS,
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S.578 - ALS Disability
Insurance Access Act of 2019
282:Wallach and Abrevaya spoke on the first day of the
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319:(updated title) became available for streaming on
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681:"Sciambi's dedication to ALS awareness endures"
446:"A Race to Rethink Care After a Dire Diagnosis"
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317:For Love & Life: No Ordinary Campaign
270:sodium phenylbutyrate/ursodoxicoltaurine
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679:Bastian, Jordan (June 22, 2022).
653:Turner, Les (December 22, 2020).
340:Alldredge, Steve (July 4, 2022).
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537:Facher, Lev (January 11, 2022).
501:Barrett, Brian (June 23, 2020).
261:Day to raise awareness for ALS.
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142:amyotrophic lateral sclerosis
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602:(Speech). Washington, D.C.:
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380:"Race to a cure for ALS"
385:CBS News Sunday Morning
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885:"No Ordinary Campaign"
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951:Founders of charities
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596:(December 23, 2021).
90:I AM ALS, Synapticure
76:Georgetown University
48:Brian Wallach in 2024
858:Seitz, Matt Zoller.
296:No Ordinary Campaign
244:United States Senate
161:. He graduated from
148:Education and career
912:. October 27, 2022.
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631:. November 2, 2022.
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130:https://iamals.org/
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452:The New York Times
378:(July 11, 2021).
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927:Appearances
894:January 16,
755:January 16,
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486:January 16,
353:January 16,
321:Prime Video
290:Documentary
257:as part of
207:Parkinson's
187:White House
940:Categories
869:October 7,
843:August 20,
818:August 20,
727:October 7,
594:Biden, Joe
376:Cowan, Lee
327:References
259:Lou Gehrig
60:1980-10-09
813:USA TODAY
722:0362-4331
517:1059-1028
236:Joe Biden
153:Education
838:NBC News
690:June 23,
609:March 9,
578:March 9,
550:March 9,
522:March 9,
458:March 9,
425:March 9,
419:Politico
391:March 9,
253:game at
118:Children
18:I Am ALS
126:Website
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931:C-SPAN
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479:WGN-TV
205:, and
177:Career
95:Spouse
508:Wired
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203:PLS
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