254:'s disease). Ninety to ninety-five per cent of cases are considered sporadic, occurring randomly in the population. The remaining 5–10% of cases are hereditary. Mutations of more than twelve genes have been found to cause the disease. Using genealogical information, Yerbury traced suspected cases of motor neuron disease in his family to at least 1920 and possibly further back. He was prompted to return to university studies to further understand the disease.
368:
Yerbury researched potential effective treatments for MND. His research interests included protein misfolding, aggregation and neurodegenerative disease, protein aggregation and neuro-inflammation and the
Propagation of protein misfolding, and protein homeostasis and Motor Neurone Disease. He was
277:) Postdoctoral Fellow at the University of Wollongong in 2012. He spent the rest of his life studying the disease which affects around 2000 Australians, alongside his team at the Illawarra Health and Medical Research Institute (IHMRI), based at the University of Wollongong.
352:
In
December 2019 QANTAS airlines co-operated with the Yerbury family to provide an appropriate hoist to enable him to travel by plane to Perth, WA for a family holiday and to enable Yerbury to present his research at the 30th International Symposium on ALS/MND.
167:
Bill Gole
Postdoctoral MND Research Fellowship, 2009; Vice Chancellor’s Emerging Researcher of the Year award, 2011; Lorne Conference on Protein Structure and Function Young Investigator Prize, 2012; MND Australia Betty Laidlaw MND Research Prize for 2017;
285:
Yerbury first knew of MND when his uncle was diagnosed in 1994. A cousin was diagnosed and died in 1997; he was 21 years old. During six-week period in 2002 his mother, grandmother and aunt all died. Fifty per cent of
Yerbury's family carry a faulty
1301:
295:
Yerbury was diagnosed with MND in 2016. His condition stabilised at first but he later required around-the-clock care and had a ventilator to allow him to breathe. He was initially denied a suitable wheelchair and house modifications under the
348:
In March 2019 Yerbury, his family and carers were turned away from a planned cruise to New
Caledonia because of a perceived "disability risk". After media attention the cruise company apologised to the family and refunded fees and costs.
327:
on his laptop computer. After this surgery, he spent six months in hospital recovering from complications. In
November 2018 he had returned home and began attending his office two days a week to continue his research.
312:, he was provided with an appropriate wheelchair and some home modifications under the scheme. Yerbury's public profile also highlighted others who encountered difficulties with the NDIS.
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228:. He graduated in 1991. He later said that he "was not much of a scientist at school." He studied for a Bachelor of Commerce and helped to run the family business.
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gene. His youngest sister died from MND at 26 years old. Yerbury and his sister, Naomi, were tested for the gene; Naomi was clear but
Yerbury's test was positive.
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Characterisation of novel extracellular molecular chaperones and their effects on amyloid formation. Thesis (Ph.D.)--University of
Wollongong, 2007
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In the late 1990s, several members of
Yerbury's extended family were diagnosed and died from motor neurone disease (MND, also known as
880:
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342:, who lived with MND for over fifty years until his death in 2018. They discussed living with the disease and Yerbury's research.
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active in sharing his research not only with the academic community but also with those with MND and their families.
265:. He worked as a research assistant, lecturer and research fellow during his studies. During 2008 and 2009 he was an
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208:. He was diagnosed with MND himself in 2016, but continued to research until his death from the disease in 2023.
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577:"Amyotrophic Lateral Sclerosis (ALS) Fact Sheet | National Institute of Neurological Disorders and Stroke"
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906:""The fine balance of proteostasis and its implications for ALS" presented by Professor Justin Yerbury"
1025:
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NSW Premier's Prizes for
Science & Engineering: Excellence in Medical Biological Sciences, 2022
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Characterisation of novel extracellular molecular chaperones and their effects on amyloid formation
408:
1065:
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Honours for "significant service to education and research in the field of biological sciences"
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and his health subsequently declined until his death, aged 49, at his home on 28 July 2023.
1277:"Epidemiologist Raina MacIntyre among brilliant Australian scientists awarded Eureka Prize"
339:
236:
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55:
606:
932:
802:"How Stephen Hawking inspired me to take drastic measures against motor neurone disease"
980:
2015 Ask the Experts 4 What's new in MND Research? Part B Questions - Dr Justin Yerbury
855:"Wollongong scientist Justin Yerbury settles with Royal Caribbean after cruise debacle"
778:
636:
471:"Justin Yerbury has motor neurone disease. Now he's racing against time to find a cure"
377:
357:
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which made him unable to speak. He then began to communicate by lip reading and using
1327:
412:
1222:"Motor Neurone Disease advocate and sufferer named Wollongong's Citizen of the Year"
345:
Yerbury was married to Rachel Yerbury. They have two daughters born 1996, and 1998.
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In January 2018 Yerbury's condition deteriorated significantly, and he underwent a
301:
753:
319:, necessitating ventilation. To further facilitate his life support he also had a
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Lorne Conference on Protein Structure and Function Young Investigator Prize, 2012
141:
Illawarra Health and Medical Research Institute (IHMRI), University of Wollongong
309:
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2015 Ask the Experts 3 What's new in MND Research? Part A - Dr Justin Yerbury
336:
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The Australian Society for Medical Research Young Investigator Award, 2004;
59:
444:
Rheinberger, Nick; Drewitt-Smith, Ainslie; Fernandez, Tim (30 July 2023).
389:
The Australian Society for Medical Research Young Investigator Award, 2004
1302:"Leading neuroscientist Glenda Halliday named NSW Scientist of the Year"
829:"Motor neurone disease expert turned away from cruise due to disability"
418:
University of New South Wales Eureka Prize for Scientific Research, 2022
261:. He received his PhD from the university in 2008 for a thesis entitled
170:
University of New South Wales Eureka Prize for Scientific Research, 2022
193:
446:"Wollongong professor Justin Yerbury dies from motor neurone disease"
373:
881:"Three seats, custom hoist let doctor trapped in own body fly again"
501:"Motor Neurone Disease - my family's story - Health & Wellbeing"
224:, where he attended Oak Flats High School in the southern suburb of
196:
research when he discovered that his family has the genetic form of
1052:
Motor Neurone Disease Research Institute of Australia Annual Review
698:"MND researcher Dr Justin Yerbury fights for a cure – and his life"
608:
The Enemy Within: Australian Story episode. (includes transcript)
288:
273:, UK. Yerbury became a Discovery Early Career Researcher Award (
257:
In 2004 Yerbury obtained a BSc with 1st class honours from the
977:
The Motor Neurone Disease Association of NSW (4 August 2015),
954:
The Motor Neurone Disease Association of NSW (4 August 2015),
879:
Drewitt-Smith, Ainslie; Rheinberger, Nick (28 November 2019).
395:
Vice Chancellor's Emerging Researcher of the Year award, 2011
780:
No Surrender, Australian Story episode (includes transcript)
1156:"IHMRI scientist wins motor neurone disease research prize"
404:
Wollongong’s Citizen of the Year, Australia Day Awards 2019
728:"Concerns motor neurone patients slipping through cracks"
380:
in addition to many conference and other presentations.
401:
MND Australia Betty Laidlaw MND Research Prize for 2017
783:, Australian Broadcasting Corporation, 1 November 2018
1248:"Australia Day Honours 2020: Full list of recipients"
1131:"NSW researcher awarded MND Research Prize for 2017"
611:, Australian Broadcasting Corporation, 21 March 2018
392:
Bill Gole Postdoctoral MND Research Fellowship, 2009
754:"Fundraising for Justin organised by Naomi Yerbury"
304:campaign. After coming to the attention of Federal
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1374:Neurological disease deaths in New South Wales
1354:Academic staff of the University of Wollongong
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188:(3 May 1974 – 28 July 2023) was an Australian
1369:Deaths from motor neuron disease in Australia
1050:"MND research fellowships and scholarships".
8:
934:Budding Ideas - May 2014 - Dr Justin Yerbury
499:Australian Broadcasting Corporation, (ABC).
200:(MND). He held the position of Professor in
372:Yerbury had 55 research articles listed in
1106:"Past Award Winners » Lorne Proteins"
691:
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269:(ARC) International Linkage Fellow at the
157:Protein misfolding and protein homeostasis
20:
16:Australian molecular biologist (1974–2023)
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931:University of Wollongong (3 July 2014),
356:In late 2022 he was hospitalised with a
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552:"Player statistics for Justin Yerbury"
325:voice software coordinated by eye-gaze
192:who was spurred to follow a career in
853:Wachsmuth, Lisa (17 September 2019).
7:
1220:Tullis, Ashleigh (22 January 2019).
298:National Disability Insurance Scheme
1344:Australian men's basketball players
235:, Yerbury played two games for the
910:International Symposium on MND/ALS
14:
1364:Members of the Order of Australia
696:Wachsmuth, Lisa (26 March 2018).
1246:Stehle, Mark (25 January 2020).
1001:"Justin Yerbury - PubMed - NCBI"
827:Judd, Bridget (10 March 2019).
149:Research into the causes of MND
102:; PhD, University of Wollongong
1:
248:amyotrophic lateral sclerosis
1379:Scientists with disabilities
1066:"VC Awards 2011 Recipients"
682:. University of Wollongong.
676:Yerbury, Justin J. (2007).
300:(NDIS), sparking an online
267:Australian Research Council
1400:
331:In April 2017 Yerbury met
241:National Basketball League
202:Neurodegenerative Disease
174:
130:
259:University of Wollongong
206:University of Wollongong
100:University of Wollongong
1359:Illawarra Hawks players
1256:. Nine Entertainment Co
281:Personal life and death
271:University of Cambridge
1384:People from Wollongong
1275:AAP (31 August 2022).
1180:: CS1 maint: others (
1090:: CS1 maint: others (
661:: CS1 maint: others (
98:BSc (Hons 1st class),
1349:Australian biologists
1253:Sydney Morning Herald
1196:"MND research grants"
1110:www.lorneproteins.org
1030:scholar.google.com.au
526:"Vale Justin Yerbury"
198:motor neurone disease
82:Motor neurone disease
1005:www.ncbi.nlm.nih.gov
212:Education and career
1054:: 5. December 2008.
637:"Dr Justin Yerbury"
216:Yerbury grew up in
190:molecular biologist
181:Justin John Yerbury
110:Molecular biologist
79:Cause of death
25:Justin John Yerbury
409:Order of Australia
1308:. 2 November 2022
1226:Illawarra Mercury
1135:www.mndnsw.asn.au
912:. 4 December 2019
859:Illawarra Mercury
702:Illawarra Mercury
581:www.ninds.nih.gov
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376:and over 100 in
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808:. 26 March 2018
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734:. 10 March 2018
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641:smah.uow.edu.au
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477:. 26 March 2018
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340:Stephen Hawking
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237:Illawarra Hawks
222:New South Wales
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146:Sub-specialties
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56:New South Wales
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532:. 31 July 2023
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505:www.abc.net.au
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407:Member of the
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378:Google Scholar
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132:Medical career
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1310:. Retrieved
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810:. Retrieved
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779:
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761:. Retrieved
758:gofundme.com
757:
748:
736:. Retrieved
731:
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671:
645:. Retrieved
640:
613:, retrieved
607:
584:. Retrieved
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555:
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508:. Retrieved
504:
479:. Retrieved
474:
450:. Retrieved
411:in the 2020
371:
367:
355:
351:
347:
344:
330:
321:laryngectomy
317:tracheostomy
314:
302:crowdfunding
294:
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180:
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138:Institutions
131:
72:(2023-07-28)
70:28 July 2023
18:
1339:2023 deaths
1334:1974 births
1010:10 November
787:10 November
337:cosmologist
310:Sharon Bird
87:Nationality
1328:Categories
1312:2 November
1260:25 January
1231:24 January
1035:2 December
916:6 December
890:6 December
864:6 December
838:6 December
643:. hallingu
530:NBL.com.au
448:. ABC News
426:References
252:Lou Gehrig
218:Wollongong
194:biological
107:Occupation
90:Australian
52:Wollongong
48:3 May 1974
44:1974-05-03
1286:31 August
333:physicist
250:(ALS) or
226:Oak Flats
95:Education
60:Australia
1205:28 March
1176:cite web
1166:28 March
1140:28 March
1115:28 March
1086:cite web
1076:28 March
1072:. aclode
986:28 March
963:28 March
940:28 March
885:ABC News
833:ABC News
812:28 March
806:ABC News
763:28 March
738:28 March
732:ABC News
707:28 March
657:cite web
647:28 March
615:28 March
586:28 March
510:28 March
481:27 March
475:ABC News
364:Research
154:Research
123:Children
561:31 July
536:31 July
452:30 July
243:(NBL).
239:in the
204:at the
1162:. benl
384:Awards
374:PubMed
162:Awards
118:Rachel
115:Spouse
306:Labor
275:DECRA
1314:2022
1288:2022
1262:2020
1233:2019
1207:2018
1182:link
1168:2018
1142:2018
1117:2018
1092:link
1078:2018
1037:2021
1012:2018
988:2018
965:2018
942:2018
918:2019
892:2019
866:2019
840:2019
814:2018
789:2018
765:2018
740:2018
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663:link
649:2018
617:2018
588:2018
563:2023
538:2023
512:2018
483:2018
454:2023
335:and
289:SOD1
233:1995
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38:Born
556:NBL
308:MP
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