526:, where a court ordered the removal of the feeding tube of a woman in a vegetative state, in compliance with the consent authorized by her husband, despite protests from her parents. Schiavo subsequently died of dehydration. The Terri Schiavo Life & Hope Network, a foundation founded by Schiavo's family, was involved in the Maraachli case. The international
252:
could "die peacefully with mom, dad at home." They hoped the procedure could prolong Joseph's life by up to six months because it had extended his older sister Zina's life by six months when she was dying of the same condition. The couple also stated that, if their son was able to live longer due to the procedure, he would die "when God says he should."
508:
Maraachli said Joseph wasn't suffering or in pain at home. Maraachli said he wants the
Canadian medical system to change so that doctors are required to more seriously consider the wishes of the family of a dying family member. He said he would "go after" the Canadian doctors. Maraachli had a message
332:
On
February 28, the London Health Services Centre put out a media release, stating it was willing to transfer Joseph to his home but would remove the ventilator once he was there. Handelman confirmed that the hospital had made such an offer, but objected to its public disclosure, stating it had been
504:
On
October 4, 2011, the Maraachlis held a press conference with the Terri Schiavo Life & Hope Network in which Moe Maraachli said he was considering a request for an investigation and a lawsuit against the Canadian doctors who refused to treat and release Joseph, noting that the family incurred
251:
The parents disputed the conclusion that Joseph was in a persistent vegetative state, saying he responded to being tickled and jostled when he felt discomfort. The family wanted a tracheotomy for him, believing it would allow him to breathe on his own, and thus be taken out of the hospital so he
263:, and other complications. Since the time of Zina's tracheotomy, more had been learned about the condition, leading doctors to conclude it was not appropriate in Joseph's case. Dr. Douglas Fraser, a pediatric critical care specialist and the lead doctor handling the case, proposed that Joseph's
336:
On March 1, it was revealed that
Handelman was no longer representing the family, though he did not disclose the reason. The family retained another lawyer, Claudio Martini, on March 5, and he announced the following week that they planned to file an appeal of the Superior Court decision.
313:
Removal of the breathing tube had been scheduled for the morning of
February 18, but Rady moved the date to February 21, stating the intent of giving the family "adequate time to say their good-byes." The family was ordered to give consent for the breathing tube's removal by February 21.
275:
London Heath
Services Centre directed the case to the Consent and Capacity Board of Ontario. It explained in a statement that it sought the Board's decision on "whether or not Joseph’s parents were complying with the principles for substitute decision-making under the provincial
401:
On March 21, 2011, doctors performed a tracheotomy on Joseph. He was expected to remain in the hospital for seven to ten days, then be transferred to a St. Louis pediatric specialty hospital, then be sent home with his family. Maraachli and Nader are an
243:
Tests and examinations on Joseph were carried out by eight specialists over a few weeks following his transfer to the LHSC. The doctors concluded that he was suffering from a "severe and progressively deteriorating neurological state" and was in a
445:
According to his father, at home Joseph was breathing on his own and showed signs of consciousness, such as opening his eyes or moving around in response to touch; his father also said that he thought that Joseph knew when he was holding him.
310:. The case was heard by Justice Helen Rady on February 17, 2011. An hour after the lawyers delivered their arguments, Justice Rady returned with her decision, upholding the Board's decision as "reasonable" and dismissing the family's appeal.
434:, but no genetic link for Joseph was found after his parents were tested. The doctors at the SSM hospital said the tracheotomy they performed gave Joseph a more stable airway, extra mobility and comfort, and protected his lungs.
513:"I made a promise to my son: I will give you back your human rights and dignity if you pass away or not...Fly and tell God about what happened with you and about the doctor that tried to kill you. Your life touched the world."
484:
Joseph lived another six months after the tracheotomy, breathing on his own, and died peacefully in his sleep on
September 27, 2011, at the age of 20 months. He had been living at home with his family since April 21, 2011.
321:, they took on a new lawyer, Mark Handelman. The family refused to consent to the breathing tube's removal, and thus it was not removed on February 21. Handelman attempted to negotiate Joseph's transfer to the
450:
Paul O'Donnell, a friend of the
Maraachli family, says he had seen Joseph turn his head to his father when his father spoke, and to his mother when his mother spoke, and also said he had seen him throw
283:
The hearing before the Board took place in
January 2011. On January 22, the Board released its decision, holding that the course of action in the child's "best interests" would be "removal of the
180:, she was taken home and cared for by her parents for her final six months. Then when she was near death, her parents took her back to the hospital, hoping to make her as comfortable as possible.
1890:
442:
On April 21, 2011, Joseph was transported from the hospital in St. Louis to his home in
Windsor, Ontario. Priests for Life paid for all of the medical bills incurred and the return flight home.
199:
When Joseph was around three months old, his parents said they noticed he couldn't eat or breathe properly, and he wouldn't open his eyes or cry. In June 2010, they took him to a hospital in
1834:
1084:
691:
916:
1141:
578:
657:
1233:
391:, declaring victory in the "battle against the medical bureaucracy in Canada." Priests for Life also announced it would pay for Joseph's medical care at Cardinal Glennon.
1828:
942:
882:
489:
said, "This young boy and his parents fulfilled a special mission from God. Amidst a Culture of Death where despair leads us to dispose of the vulnerable, upheld a
550:
118:, arguing that while Joseph's disease was terminal, a tracheotomy would extend his life and allow him to die at home. After several months and efforts by American
1447:
996:
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333:
presented during confidential negotiations. He said Joseph's parents had already rejected the offer prior to the media release, considering it "unacceptable."
1743:
1690:
757:
505:
over $ 46,000 in legal fees during the ordeal. Maraachli said he was angry at the Canadian doctors but thankful for the Cardinal Glennon "angel doctors".
1299:
1385:
522:
The case became a focal point for the ethical debate over the extent to which end-of-life care should be provided. The case draws many parallels to the
267:
be removed, with the expectation that he would die soon afterward from his inability to breathe unaided. His parents refused to agree to this proposal.
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472:
reported that he was positive about the outcome of his and others' efforts, and said he didn't think about when his son would die, but left that up to
1922:
1917:
255:
The doctors at the hospital refused to perform a tracheotomy because they said it would needlessly protract Joseph's death and increase the risk of
248:. They were in "unanimous agreement" that he did not have any chance of recovering and that there were no treatment options available to help him.
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376:
1854:
1076:
683:
464:
With Joseph home, his father said, "I feel victorious. I feel I won and my baby's alive." O'Donnell described Joseph's condition at home as a
394:
Once Joseph was in Cardinal Glennon, Priests for Life said hospital officials were happy that Joseph was breathing mostly on his own, but the
1409:
317:
On February 20, the family fired Snow, as he did not advise pursuing an appeal of Rady's ruling. With the support of Alex Schadenberg of the
1027:
908:
807:
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329:. The Children's Hospital initially accepted the request, but later chose to reject the request after receiving the baby's medical file.
358:
137:
The successfully-obtained procedure extended Joseph's life for several months. Joseph died on Tuesday, September 27, 2011, at his home.
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reported that "Cardinal Glennon officials said they were 'puzzled' by those claims and said Joseph remained on a ventilator."
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A private funeral for Joseph was held on September 28. He was buried beside his sister Zina at a cemetery in Windsor.
245:
468:. Joseph's father said the fact that he had to travel to St. Louis to get care for his son angered him. However, the
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858:
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211:. At the Michigan hospital, he was diagnosed with a metabolic brain disease that the doctor said would make him
1932:
1884:
212:
215:, and was treated, his health reportedly improving. However, in the car on the way back from a family trip to
780:
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which was standing by to immediately fly the family to any American hospital willing to care for Joseph.
1859:
1695:
103:
1749:
1198:
361:, among others, began helping the family and began negotiating in March 2011 with hospitals around the
173:
183:
Moe Maraachli once repaired computers, but gave up this work to take care of his wife Sana, who has
114:, calling the procedure invasive and futile, Joseph's parents fought to have him transferred to the
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community rallied around the family, offering support and money to help pay for the medical costs.
403:
1406:
609:
1844:
1787:
1730:
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1019:
803:
523:
447:
288:
224:
423:
107:
414:, respectively; Maraachli said he wanted his son to be "raised in the religion of his mother."
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91:
refers to an international controversy over the life of Joseph Maraachli, commonly known as
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to the removal of the breathing tube. They decided to appeal the Board's decision in the
1812:
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was born on January 22, 2010. His parents, Moe Maraachli and Sana Nader, immigrated to
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Doctors at the SSM Cardinal Glennon Children's Medical Center diagnosed Joseph with
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111:
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On March 14, 2011, Priests for Life announced it had secured a transfer to
431:
411:
388:
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to have Joseph transferred. Priests for Life announced it had secured a
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455:
such as when his diaper was changed. At one point in the presence of a
326:
299:
216:
166:
158:
69:
46:
426:, a rare neurometabolic disorder which causes the degeneration of the
1665:
461:
reporter, Joseph's father held out his finger and Joseph grabbed it.
154:
99:
407:
1429:
1138:"Godfather: Baby Joseph's baptism shows life's eternal destiny"
172:
In 2002, the couple's 18-month-old daughter, Zina, died from a
1263:"'Baby Joseph,' focus of treatment dispute, dies in his sleep"
547:"'Baby Joseph' Dies in His Canadian Home Surrounded by Family"
473:
219:
in October 2010, he stopped breathing, so he was rushed to an
1407:"Canadian family fights to move baby on life support to U.S."
610:"Canadian family fights to move baby on life support to U.S."
493:
where hope leads us to welcome and care for the vulnerable."
1050:"EXCLUSIVE: 'Baby Joseph' Gets Second Chance at Life in U.S"
1111:"'Baby Joseph' receives tracheotomy at St. Louis hospital"
1891:
Greenberg v. Miami Children's Hospital Research Institute
280:
in refusing to consent to the proposed treatment plan."
102:
who was diagnosed with a rare progressive and incurable
576:'Baby Joseph' Dies at Home After Long Treatment Battle
1261:
Maggie Schneider; Sabriya Rice (September 29, 2011).
781:"Baby returns home to Canada after treatment in U.S."
909:"Windsor family refuses court order to let baby die"
1758:
1714:
1598:
1513:
1463:
833:"Just the Facts: Medical, Legal and Ethical Issues"
589:
Medical Unit, Sept. 28, 2011. Retrieved 2011-10-12.
77:
54:
28:
21:
1077:"Dying infant's surgery raises ethical questions"
717:
715:
713:
711:
709:
1829:Moore v. Regents of the University of California
1234:"'I feel victorious,' says Baby Joseph's father"
876:
874:
872:
827:
825:
797:
795:
793:
754:"Windsor parents want sick child to die at home"
651:
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1224:
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623:
621:
619:
511:
1382:"Baby Joseph's parents say 'shame on doctors'"
1351:
1349:
1347:
1345:
964:Kate Dubinski; Jonathan Sher (March 2, 2011).
110:. After Canadian doctors refused to perform a
1441:
939:"Dying baby's breathing tube removal delayed"
8:
1744:Schloendorff v. Society of New York Hospital
1296:"Priest says Baby Joseph 'fulfilled mission"
1290:
1288:
1286:
1284:
1256:
1254:
1170:"Who has right to tell Baby Joseph to die?"
1840:Medical Experimentation on Black Americans
1448:
1434:
1426:
377:Cardinal Glennon Children's Medical Center
306:, retaining a lawyer, Geoff Snow, through
18:
570:
568:
1778:Albert Kligman's dermatology experiments
859:"Appeal denied: Baby to die in hospital"
684:"'Let him breathe,' baby's dad implores"
1835:Surgery to try to improve mental health
1302:from the original on September 28, 2011
1193:
1191:
1104:
1102:
945:from the original on September 29, 2011
883:"Couple lose appeal to bring baby home"
760:from the original on September 29, 2011
724:"Hospital disclosure muddies baby case"
694:from the original on September 10, 2011
553:from the original on September 28, 2011
538:
1319:
1317:
1163:
1161:
1159:
919:from the original on February 24, 2011
603:
601:
599:
597:
595:
191:payments and support from her family.
16:Controversial case of terminal disease
1199:"'Baby Joseph' Flying Home to Canada"
1117:from the original on November 9, 2012
134:, where the procedure was performed.
7:
1144:from the original on August 16, 2011
804:"Judge orders baby off life-support"
734:from the original on January 8, 2018
122:groups, Joseph was transferred to a
1205:from the original on April 23, 2011
1087:from the original on March 18, 2011
1075:Bernhard, Blythe (March 15, 2011).
1056:from the original on March 15, 2011
976:from the original on August 8, 2016
810:from the original on April 23, 2011
549:. FoxNews.com. September 28, 2011.
359:American Center for Law and Justice
207:, which is located directly on the
1357:"Baby Joseph's family seeks probe"
1269:from the original on March 4, 2016
1030:from the original on March 7, 2011
1020:"Jet at ready to move Baby Joseph"
682:Blythe Bernhard (March 16, 2011).
608:Sabriya Rice (February 25, 2011).
14:
881:Sonja Puzic (February 18, 2011).
857:Sonya Puzic (February 18, 2011).
835:. London Health Services Centre.
656:Sonja Puzic (February 26, 2011).
357:Life & Hope Network, and the
304:Ontario Superior Court of Justice
1298:. CBC News. September 28, 2011.
1176:from the original on May 1, 2011
1136:Benjamin Mann (March 25, 2011).
997:"Baby's family files new appeal"
995:Chris Thompson (March 9, 2011).
907:Pat Hewitt (February 21, 2011).
187:. The couple depended on Sana's
1923:People with severe brain damage
1918:Medical controversies in Canada
1611:Betancourt v. Trinitas Hospital
1412:from the original on 2011-03-03
1388:from the original on 2011-10-06
1201:. FoxNews.com. April 21, 2011.
1109:Sabriya Rice (March 21, 2011).
1052:. FoxNews.com. March 14, 2011.
1018:Kate Dubinski (March 4, 2011).
941:. CBC News. February 21, 2011.
839:from the original on 2012-04-06
802:Jane Sims (February 18, 2011).
722:Jonathan Sher (March 1, 2011).
323:Children's Hospital of Michigan
319:Euthanasia Prevention Coalition
1855:Radioactive iodine experiments
1:
1798:Guatemala syphilis experiment
1325:"No word on possible lawsuit"
966:"Lawyer off Baby Joseph case"
779:Jim Salter (April 21, 2011).
756:. CBC.ca. February 17, 2011.
341:Transfer to the United States
229:London Health Sciences Centre
227:and later transferred to the
1168:Neil Katz (April 22, 2011).
298:The parents were ordered to
239:Parents and doctors disagree
1913:History of Windsor, Ontario
1808:Human radiation experiments
246:persistent vegetative state
209:Canada–United States border
195:Beginning of medical issues
1949:
1865:Stanford prison experiment
161:in the 1990s, settling in
1767:Abdullahi v. Pfizer, Inc.
1618:Commonwealth v. Twitchell
1475:Betty and George Coumbias
430:. The disease is usually
1885:Willowbrook State School
1140:. Catholic News Agency.
203:, a few miles away from
1880:Tuskegee Syphilis Study
1823:Joseph Gilbert Hamilton
1602:parent/patient/guardian
1600:Medical opinion against
1081:St. Louis Post-Dispatch
688:St. Louis Post-Dispatch
396:St. Louis Post-Dispatch
287:without replacement, a
278:Health Care Consent Act
213:developmentally delayed
1641:Archie Battersbee case
1007:on September 19, 2012.
515:
428:central nervous system
349:organizations such as
81:Moe and Sana Maraachli
1860:Skid Row Cancer Study
1696:Spiro Nikolouzos case
1681:Joseph Maraachli case
574:Hutchison, Courtney.
176:. After undergoing a
174:degenerative disorder
104:neurological disorder
89:Joseph Maraachli case
1875:Plutonium injections
1457:Medical ethics cases
893:on January 18, 2013.
668:on January 21, 2015.
1701:Aruna Shanbaug case
1624:Mordechai Dov Brody
1845:Milgram experiment
1788:Deep sleep therapy
1750:Christiane Völling
1731:Gillick competence
581:2020-01-11 at the
524:Terri Schiavo case
289:Do Not Resuscitate
58:September 27, 2011
1900:
1899:
1651:Tirhas Habtegiris
1646:Charlie Gard case
1580:Karen Ann Quinlan
1500:Piergiorgio Welby
970:London Free Press
728:London Free Press
404:interfaith couple
285:endotracheal tube
85:
84:
1940:
1928:Death in Ontario
1726:Ashley Treatment
1716:Informed consent
1686:Jahi McMath case
1636:Alfie Evans case
1630:Lantz v. Coleman
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1378:
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1359:. Archived from
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1327:. Archived from
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1309:
1307:
1292:
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1236:. Archived from
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1003:. Archived from
1001:The Windsor Star
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913:The Toronto Star
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889:. Archived from
887:Edmonton Journal
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664:. Archived from
662:The Windsor Star
653:
614:
613:
605:
590:
572:
563:
562:
560:
558:
543:
351:Priests for Life
271:Legal challenges
151:Joseph Maraachli
61:
39:January 22, 2010
38:
36:
23:Joseph Maraachli
19:
1948:
1947:
1943:
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1933:2011 in Ontario
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1902:
1901:
1896:
1818:Jesse Gelsinger
1803:Henrietta Lacks
1754:
1718:
1710:
1691:Sarah Murnaghan
1671:Ashya King case
1661:Sun Hudson case
1603:
1601:
1594:
1560:Vincent Lambert
1517:
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1485:Giovanni Nuvoli
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681:
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673:
658:"On god's time"
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583:Wayback Machine
573:
566:
556:
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491:Culture of Life
482:
453:temper tantrums
440:
424:Leigh's disease
420:
379:, a non-profit
343:
293:palliative care
273:
241:
233:London, Ontario
197:
148:
143:
108:Leigh's disease
73:
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1813:J. Marion Sims
1810:
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1793:Doctors' Trial
1790:
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1773:Albert Stevens
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528:anti-abortion
525:
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470:Vancouver Sun
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360:
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355:Terri Schiavo
352:
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62:(aged 1)
57:
53:
48:
44:
31:
27:
20:
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1827:
1783:David Reimer
1765:
1742:
1735:
1719:to treatment
1706:David Vetter
1680:
1628:
1616:
1609:
1555:June Hartley
1545:Baby Doe Law
1414:. Retrieved
1401:
1390:. Retrieved
1376:
1365:. Retrieved
1361:the original
1333:. Retrieved
1329:the original
1304:. Retrieved
1271:. Retrieved
1242:. Retrieved
1238:the original
1207:. Retrieved
1178:. Retrieved
1172:. CBS News.
1146:. Retrieved
1131:
1119:. Retrieved
1089:. Retrieved
1080:
1070:
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1044:
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1023:
1013:
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1000:
990:
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969:
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933:
923:September 2,
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912:
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886:
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812:. Retrieved
783:
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748:
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727:
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687:
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661:
586:
555:. Retrieved
541:
521:
512:
509:for Joseph:
507:
503:
495:
487:Frank Pavone
483:
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383:hospital in
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126:hospital in
92:
88:
86:
60:(2011-09-27)
1535:Paul Brophy
1516:Withholding
1514:Euthanasia/
1265:. CNN.com.
1113:. CNN.com.
1024:Toronto Sun
863:Toronto Sun
178:tracheotomy
112:tracheotomy
93:Baby Joseph
1907:Categories
1656:Rom Houben
1540:Carol Carr
1530:Tony Bland
1480:Dax Cowart
1416:2011-03-09
1392:2011-10-07
1367:2018-10-04
1335:2018-10-04
1244:2018-10-04
1148:October 3,
980:October 4,
949:October 3,
843:2011-10-03
764:October 1,
738:October 4,
534:References
438:Going home
291:order and
231:(LHSC) in
189:disability
146:Background
35:2010-01-22
1870:Study 329
1518:treatment
1465:Assisted
1209:April 21,
1180:April 29,
1121:March 23,
1091:March 19,
1060:March 14,
500:Aftermath
432:inherited
418:Diagnosis
385:St. Louis
308:legal aid
261:pneumonia
257:infection
225:Ingersoll
128:St. Louis
78:Parent(s)
1759:Research
1410:Archived
1386:Archived
1300:Archived
1267:Archived
1203:Archived
1174:Archived
1142:Archived
1115:Archived
1085:Archived
1054:Archived
1034:March 9,
1028:Archived
974:Archived
943:Archived
917:Archived
837:Archived
808:Archived
758:Archived
732:Archived
692:Archived
612:CNN.com.
587:ABC News
579:Archived
551:Archived
412:Catholic
406:, being
389:Missouri
381:Catholic
345:Various
201:Michigan
132:Missouri
124:Catholic
97:Canadian
72:, Canada
49:, Canada
1467:suicide
466:miracle
448:Brother
327:Detroit
300:consent
217:Toronto
205:Windsor
167:Ontario
163:Windsor
159:Lebanon
141:History
106:called
70:Ontario
66:Windsor
47:Ontario
43:Windsor
1666:Baby K
1570:Baby M
518:Impact
408:Muslim
353:, the
155:Canada
100:infant
480:Death
185:lupus
157:from
1308:2011
1275:2011
1211:2011
1182:2011
1150:2011
1123:2011
1093:2011
1062:2011
1036:2011
982:2018
951:2011
925:2017
816:2011
766:2011
740:2018
700:2011
559:2011
410:and
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474:God
374:SSM
367:jet
325:in
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