94:, who had murdered several hundred patients. âIt was very difficult to recruit to Shipmanâs practice because of trust locally. But Amir said, âRight from the start I will share everything with my patients, and gave them access to all their own records." "He's got examples of patients being admitted to hospital where they have had to show the consultants their record which may have saved their lives. It's policy to try and make it happen. But it's not moving quickly enough.â
101:. They could go online to order prescriptions, communicate with their GP or even to print off their medical records to take to appointments with hospital consultants. As of October 2014 the practice had enabled over 3,200 patients - 28% of its total patient population - to have electronic access to their GP record. This level of access has been shown to cut down on appointments by as much as 12% and the number of phone calls made to practices.
265:
IT failure caused weeks of problems. About 1,000 appointments and procedures were cancelled and the cost of âmanaging and recoveringâ from the impact was estimated at ÂŁ675,000. These failures block access to records, preventing clinicians from ordering investigations, restricting service provision,
159:
controversy by placing detailed information and an opt-out form of the practice website about the care.data scheme linked to various information sources including the practiceâs understanding, not just the official information provided by NHS England. The practice has had 372 patients opt out using
85:
Failures to link up medical records held by hospitals and those kept by their family doctors put patient's lives at risk, according to Prof Steve Field of the Care
Quality Commission. He says this could be tackled by giving patients access to their own records â a system pioneered, in an attempt to
104:
Ingrid
Brindle, a patient at Hannan's practice, has had online access to her record for over eight years. She said having access to her record was âinvaluableâ and allowed her and her GP to work together as a âteamâ. âThe amount of time I don't have to contact the practice is incredible,â she told
30:
in the United
Kingdom has developed most fully in respect of the GP record, because computerisation in that field is almost universal. British hospitals were slower to move into electronic records. From 1 April 2015 all GP practices in England have to provide online services to patients, including
72:
said that the numbers of practices providing patients with online access to their records âshot upâ after it allowed GPs to tailor the parts of the record that patients can see. GPs are required from 2015 only to offer patients online access to the medication, allergies and adverse reactions in
129:
says: âOn the one hand there is a great deal of innovation out there, but we are too dependent on the work of Dr Hannan and others. There is also too much variation, something great can be going on in one area but it can be a completely different story just down the road.â
172:
Community
Partnerships can use Microsoft Lync. This can be used to offer the patient a virtual assessment. Patients can access Lync through an emailed hyperlink and a clinician can then assess the symptom via video call, reducing the time taken out of the patientâs day.
266:
and bringing much healthcare to a halt. These failures are attributed to a lack of attention to NHS IT infrastructure - computers, servers, and networks, and the supporting processes and staff which ensure usability, stability, and security. According to the
117:, in November 2014 outlining plans for patients to be able to add comments into their care records from March 2018 and for NHS regulators to take action against trusts failing to hit new technology targets. It was enthusiastically supported by
121:
who argued that interested patients and carers, especially those accustomed to self-management of their condition, should take the lead in creating apps and other means of accessing records that are customised to the needs of patient groups.
1069:
146:
Sharing their electronic health records with people who have type 2 diabetes helps them to reduce their blood sugar levels. It is a way of helping people understand their own health condition and involving them actively in its management.
409:
185:
patients, Renal patient view, provides online information for kidney patientsâ including diagnoses, treatment and latest test results. Almost all renal units in the UK can use this system, and it has been extended to patients with
109:
event. âI really don't understand why so little progress has been made. Empowering patients and giving them control over their situation so that they understand when they're making their health choices, to me it's a no-brainer.â
673:
413:
1095:
53:
gave patients the right to see any medical report relating to them "which is to be, or has been, supplied by a medical practitioner for employment purposes or insurance purposes". The
457:
365:
1544:
1287:
742:
1447:
822:"Supporting patient access to medicines in community palliative care: on-line survey of health professionals' practice, perceived effectiveness and influencing factors"
233:
was supposed to have been implemented on 1 November, but was delayed, and generated resistance from GPs with concerns about extra workload and distress for patients.
1175:
258:
242:
546:
1345:
1213:
1130:
956:
501:
138:
As part of the
Scottish Government's 2020 Vision for Health and Social Care, all patients will be given online access to their own health records by 2020.
1120:
647:
262:
1125:
1109:
524:
764:
125:
Progress has been slow and patchy. Hannan says "If we set a target like 2018 for things to happen, then it will be 2025 before they do.â Professor
1100:
1135:
1115:
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871:
387:
343:
988:
695:
246:
44:
68:
Only 3% of GPs in
England offered online record access in October 2014 to patients although all of them were expected to by April 2015.
97:
150 patients at the practice were given access to their medical records and test results over the internet in 2007 using a system run by
1498:
592:"Impact of providing patients access to electronic health records on quality and safety of care: a systematic review and meta-analysis"
1539:
1365:
195:
50:
1206:
479:
98:
69:
54:
229:
In 2022 the âCitizenâs Access
Programmeâ â giving patients in England automatic access to their prospective GP records through the
1534:
949:
118:
77:
announced in
September 2015 that all patients will be entitled to read and write to all their NHS health records online by 2018.
1315:
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267:
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187:
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787:"Nurses and pharmacists are key to improving access to end of life medicines for people being cared for at home"
1378:
1282:
1151:
590:
Neves, Ana Luisa; Freise, Lisa; Laranjo, Liliana; Carter, Alexander W; Darzi, Ara; Mayer, Erik (12 June 2020).
62:
58:
32:
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1016:
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A system for patients to opt out of sharing their personal health data beyond direct care was launched by
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1302:
1166:
1005:
820:
Latter S, Campling N, Birtwistle J, Richardson A, Bennett MI, Ewings S, et al. (September 2020).
1508:
999:
223:
872:"Major IT failure that hit four hospitals and affected thousands of patients expected to cost ÂŁ675k"
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329:
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654:(Plain English summary). National Institute for Health and Care Research. 21 October 2020.
106:
1513:
1442:
270:
27% of NHS clinicians lose more than four hours a week because of inefficient IT systems.
90:. Hannan faced a difficult problem when he took over the GP practice formerly held by Dr
793:(Plain English summary). National Institute for Health and Care Research. 15 June 2021.
1472:
1427:
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1388:
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648:"Sharing electronic records with patients led to improved control of type two diabetes"
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284:
91:
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806:
203:
17:
569:"Patients to be given online access to their own health records in Scotland by 2020"
1467:
1399:
1026:
279:
893:
674:"Dr Amir Hannan: 'This goes to the very heart of the doctor-patient relationship'"
1452:
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435:
410:"Failure to join up medical records is a 'health risk', says GP chief inspector"
215:
87:
74:
838:
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1222:
1191:
607:
615:
1320:
1074:
743:"Poor uptake of new scheme to give patients control of confidential records"
219:
156:
126:
857:
633:
344:"Most people don't know they have the right to view medical records online"
480:"Electronic access to records will see GPs 'working happier, but harder'"
191:
798:
659:
458:"Giving patients online records access 'cuts appointment demand by 12%'"
1407:
1340:
1180:
230:
929:
765:"What we know (and don't know) about the records access rollout chaos"
257:
There have been IT system failures across primary and secondary care.
1383:
934:
894:"Failing IT infrastructure is undermining safe healthcare in the NHS"
169:
245:(NIHR) suggests that giving nurses and pharmacists easier access to
249:
about prescribing could help people manage their symptoms at home.
1079:
1064:
182:
915:
Investigating
Decentralized Management of Health and Fitness Data
226:
complained that there had been little publicity for this scheme.
1195:
938:
113:
The NHS England
National Information Board produced a document
525:"Only patients can unlock the potential of electronic records"
332:. Patient health records: Access, sharing and confidentiality.
696:"Locala community health partnership moves to mobile working"
330:"Patient health records: Access, sharing and confidentiality"
502:"Patients to be able to write in their records from 2018"
222:
fiasco, but by 1 October, only 2,185 people had used it.
1096:
American Association for Medical Systems and Informatics
73:
their summary care record, not to the complete record.
547:"Paperless NHS supplement: Technology â instant access"
388:"Hunt: Patients to access entire record online by 2018"
57:
gave them the right to inspect their own records. The
366:"GPs restricting patients' access to online records"
1491:
1397:
1364:
1301:
1288:
Health Insurance Portability and Accountability Act
1258:
1229:
1144:
1088:
1050:
972:
1176:List of medical and health informatics journals
412:. Independent. 2 September 2014. Archived from
243:National Institute for Health and Care Research
1346:Participative decision-making in organizations
65:apply to medical records as to other records.
1207:
950:
8:
874:. Manchester Evening News. 8 September 2022
263:Northern Care Alliance NHS Foundation Trust
1545:Government databases in the United Kingdom
1214:
1200:
1192:
957:
943:
935:
504:. Health Service Journal. 13 November 2014
390:. Health Service Journal. 2 September 2015
847:
837:
745:. Health Service Journal. 12 October 2018
623:
261:stopped working for 10 days in 2022. The
259:Guy's and St Thomas' NHS Foundation Trust
1101:American Medical Informatics Association
1136:American College of Medical Informatics
549:. Health Service Journal. 13 March 2015
296:
989:Artificial intelligence in healthcare
571:. Scottish Daily Record. 5 March 2014
436:"Web records prove hit with patients"
202:is funding a pilot for patients with
7:
45:Electronic health records in England
698:. Computer Weekly. 4 September 2014
1366:Health information on the Internet
196:Salford Royal NHS Foundation Trust
86:restore patient confidence, by Dr
51:Access to Medical Reports Act 1988
25:
115:Personalised Health and Care 2020
55:Access to Health Records Act 1990
1499:Open-source healthcare software
1374:Health information on Knowledge
523:Darzi, Ara (13 November 2014).
1:
1037:Health information management
1022:health information technology
218:in 2018 as a response to the
155:Dr Hannan has dealt with the
1012:Translational bioinformatics
241:Research funded by the UK's
1316:Doctorâpatient relationship
1223:Telemedicine and telehealth
1042:Consumer health informatics
482:. GP Online. 7 October 2014
438:. BBC News. 5 February 2007
346:. Guardian. 6 November 2014
268:British Medical Association
168:Both patients and staff of
1561:
1351:Patient Activation Measure
1089:Professional organizations
839:10.1186/s12904-020-00649-3
718:"Renal patient view (RPV)"
368:. Pulse. 25 September 2014
305:"Access to health records"
247:electronic patient records
188:inflammatory bowel disease
42:
33:electronic medical records
1540:Electronic health records
1423:Remote patient monitoring
1131:International Association
1060:Continuity of Care Record
1032:Public health informatics
767:. Pulse. 14 November 2022
608:10.1136/bmjqs-2019-010581
1379:Online patient education
1283:Electronic health record
1152:Electronic health record
676:. Pulse. 28 January 2014
596:BMJ Quality & Safety
527:. Health Service Journal
181:A system developed for
63:Data Protection Act 2018
59:Data Protection Act 1998
1535:National Health Service
980:Medical image computing
160:this tool in one week.
1504:Patient opinion leader
1356:Shared decision-making
1293:Personal health record
1052:Medical classification
1017:Translational medicine
896:. BMJ. 9 November 2022
722:Salford Royal Hospital
1336:Knowledge translation
1303:Patient participation
1167:Personalized medicine
1006:Computational biology
460:. Pulse. 3 April 2013
43:Further information:
28:Patient record access
18:Patient record access
1509:Research participant
1112:(to merge from 2020)
1110:Australasian College
1000:Behavior informatics
1230:Background concepts
1121:European Federation
984:imaging informatics
826:BMC Palliative Care
799:10.3310/alert_46494
660:10.3310/alert_42103
416:on 6 September 2014
200:Scottish Government
1483:Telerehabilitation
1237:Health informatics
1171:precision medicine
1162:Remote manipulator
1126:Indian Association
1106:Australian Society
966:Health informatics
309:Medical Protection
164:Community Services
31:access to summary
1522:
1521:
1458:Teleophthalmology
1448:Telemental health
1433:Tele-epidemiology
1278:De-identification
1250:Telecommunication
1189:
1188:
1116:Brazilian Society
602:(12): 1019â1032.
16:(Redirected from
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1331:Health education
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1209:
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994:Neuroinformatics
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177:Hospital records
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1473:Telepsychiatry
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1428:Tele-audiology
1425:
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1418:Remote therapy
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1413:Remote surgery
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1400:subspecialties
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1145:Other concepts
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92:Harold Shipman
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1492:Roles to play
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1478:Teleradiology
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1463:Telepathology
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791:NIHR Evidence
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735:
723:
719:
713:
710:
697:
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652:NIHR Evidence
649:
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