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In 2011, the FDA made it a priority to clarify the requirements for approval for such a closed-loop monitoring and drug delivery device for T1D, and announced it was preparing draft guidelines. JDRF launched a campaign to influence those guidelines to be lenient. After the first closed-loop device
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The FDA lobbying campaign was part of a gradual realignment of the organization to focus on issues other than helping find a cure for JD, but to help treat and manage the disease. This broadened scope meant that the organization increasingly directed its funds to education and advocacy, along with
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In 1974, four years after JDRF was founded in the United States, a group of parents determined to find a cure for their children living with type 1 diabetes (T1D) came together and began JDRF Canada, launching the largest funder and advocate for T1D research in Canada. The UK arm of the
Juvenile
225:(T1D) research, provides a broad array of community and activist services to the T1D population and actively advocates for regulation favorable to medical research and approval of new and improved treatment modalities. It was initially founded as the
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312:) was founded by Richard Lawson in 1986. In 1988 he became Director. The Foundation is now known as the Juvenile Diabetes Research Foundation (JDRF) and is "the leading global organisation funding Type 1 Diabetes research".
280:, the authors observed that the JDRF "... has become adept at unleashing an army of hard-to-resist lobbyists – made up of determined parents and their afflicted children – on researchers, politicians and potential donors."
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via a computerized program that would use blood glucose levels obtained through the CGM to calculate an insulin dosage to be dispensed through the insulin pump. The first such device was approved in 2016.
882:
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In 2019, JDRF International appointed its first-ever CEO and
President with Type 1 Diabetes, Dr. Aaron Kowalski. Prior to taking this role, Kowalski served as JDRF's Chief Mission Officer for five years.
872:
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research funding. This included lobbying insurance companies to pay for CGM devices, educating patients on how to advocate for themselves, and lobbying
Congress for more NIH funding.
295:
249:
JDRF was founded to find a cure for juvenile diabetes; in the 2000s, it broadened its research efforts to include ways to better manage the disease and ways to prevent it.
798:
324:
In 2018, JDRF provided $ 85 million (37% of their total income) to T1D scientific research grants; they provided $ 156.4 million (67% of their total income) in 2008.
694:"Ballot drive puts stem-cell funding in voters' hands. In California, diabetes groups show growing influence as they push for research; big backing from Hollywood"
877:
867:
260:, and had become interested in juvenile diabetes and medical devices after his son was diagnosed with the condition. The focus was on integrating continuous
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was approved in 2016, JDRF lobbied insurance companies to cover it. The campaign also put resources into educating people with diabetes on how to navigate
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In 2005 the board of JDRF committed to supporting work on medical devices to manage blood glucose, known as
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ProPublica, Mike Tigas, Sisi Wei, Ken
Schwencke, Brandon Roberts, Alec Glassford (9 May 2013).
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The images above provide an overview of JDRF research spending from 2001 to 2018.
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technology. The Board was urged to do so by
Jeffrey Brewer, who founded and sold
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567:"Robotic Pancreas: One Man's Quest to Put Millions of Diabetics on Autopilot"
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518:"Juvenile Diabetes Research Foundation: mission, strategy, and priorities"
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675:"The risky bet behind the first 'artificial pancreas' for diabetes"
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229:, the Juvenile Diabetes Foundation, before changing its name to
719:
387:- hosts annual 'Gingerbread Village' to raise funds for JDRF
648:"Artificial Pancreas Gives Girl a Vacation from Diabetes"
490:"Diabetes charity changes name as part of global rebrand"
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Medical and health organizations based in New York City
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516:Insel, RA; Deecher, DC; Brewer, J (January 2012).
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873:Non-profit organizations based in New York City
744:"Aaron Kowalski Named JDRF President and CEO"
8:
797:: CS1 maint: multiple names: authors list (
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381:fraternity (official national philanthropy)
365:, heir to the Johnson & Johnson fortune
692:Regalado, A; Waldholz, M (31 March 2004).
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781:"Jdrf International - Nonprofit Explorer"
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762:"2019 JDRF Research Grant Allocation"
597:"Medical devices: Managed by machine"
286:health insurance in the United States
231:Juvenile Diabetes Research Foundation
208:Juvenile Diabetes Research Foundation
7:
868:1970 establishments in Pennsylvania
673:Robbins, Rebecca (3 October 2016).
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863:Organizations established in 1970
698:Wall Street Journal (Eastern Ed.)
473:Exempt Organizations Select Check
858:Charities based in New York City
422:Pennsylvania Department of State
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817:Juvenile Diabetes Cure Alliance
766:Juvenile Diabetes Cure Alliance
748:Juvenile Diabetes Cure Alliance
479:. Retrieved September 27, 2017.
424:. Retrieved September 27, 2017.
299:Representatives from JDRF with
571:Wired Magazine, April 19, 2010
1:
237:. As of 2024 it is known as
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813:"2017 JDRF Grant Spending"
573:. Vol. 18, no. 5
124:JDRF Therapeutics Fund LLC
595:Dolgin, E (17 May 2012).
24:
477:Internal Revenue Service
221:organization that funds
303:on Capitol Hill in 2018
278:The Wall Street Journal
276:; in a 2004 article in
272:JDRF has advocated for
16:Type 1 diabetes charity
853:Diabetes organizations
494:www.civilsociety.co.uk
385:Sheraton Grand Seattle
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91:New York, New York, US
79:nonprofit organization
55:Lee Ducat, Carol Lurie
39:; 54 years ago
357:Noted philanthropists
308:Diabetes Foundation (
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233:, later shortened to
616:2012Natur.485S...6D
254:artificial pancreas
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652:CNN, March 4, 2012
452:JDRF International
418:JDRF International
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274:stem cell research
108:Political advocacy
534:10.2337/db11-1398
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148:$ 189,479,405
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120:Subsidiaries
72:Legal status
700:: A1, A12.
528:(1): 30–5.
264:(CGMs) and
177:Volunteers
158:$ 7,176,427
847:Categories
785:ProPublica
729:2020-01-14
499:2024-07-19
404:References
398:Juvenation
258:Citysearch
164:Employees
67:23-1907729
62:Tax ID no.
44:1970-05-28
456:Guidestar
219:501(c)(3)
154:Endowment
142:Expenses
113:Education
76:501(c)(3)
793:cite web
706:15250089
634:22616096
552:22187372
522:Diabetes
392:See also
320:Research
130:Revenue
85:Location
612:Bibcode
543:3237656
245:History
189:Website
184:300,000
52:Founder
42: (
34:Founded
720:"JDRF"
704:
658:10 May
632:
604:Nature
577:10 May
550:
540:
179:(2015)
166:(2015)
144:(2016)
132:(2016)
99:Method
600:(PDF)
799:link
702:PMID
679:STAT
660:2013
630:PMID
579:2013
548:PMID
469:JDRF
310:JDRF
235:JDRF
196:.org
194:jdrf
20:JDRF
620:doi
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538:PMC
530:doi
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227:JDF
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