Knowledge (XXG)

Independent living

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745:, and the provincial and federal governments tend to squabble over funding. All levels of government are pressured to limit spending while maintaining equitable and accessible services for disabled and dependent persons. The result is a fragile system of provincially run community care services that ration medical care while avoiding the complex social issue of long-term community care reform. Canadian policymakers talk about a social model of disability and typically recognise that this model is preferred by disabled persons, however, the policy reality of independent living falls closer to a model that combines biomedical and neoliberal ideologies while neglecting social and environmental determinants of ability. Independent living remains difficult for many people and institutionalisation is offered as an ongoing practical solution to meeting care needs. Noticeable in the ideological push for independent living is the marketisation of institutional care as independent living in 21st century Canada. Funding is through a decentralised mix of publicly paid, private-for-profit, and private-not-for-profit systems. Beyond home care, community care is offered through a variety of service delivery models including supportive living, assisted living, and long-term care. 689:. His biggest educational challenge came when he was accepted at college. After struggling to get accepted, the UCBerkeley refused to give Roberts financial aid. He then sued Berkeley for access and integration. Although he won the case, Roberts was housed in school's infirmary instead of the dorms. As others with disabilities started attending the school and living in the infirmary, an activist group called the Rolling Quads was formed. They ended up starting the Disabled Students' Program, a resource for those with disabilities that was run by people with disabilities. This program led to the first independent living center in America being made, the Berkeley Center for Independent Living. These centers flourished across the United States and are a huge part of why Ed Roberts was so instrumental in the start of the Independent Living Movement. As well, a major project in Berkeley, California led by Roberts and others at the Center for Independent Living led to curb cuts up and down Telegraph and Shattuck Avenues creating an extensive path of travel. 706:
changed when farm workers and their families, replaced by technology on farms, migrated from small rural communities to large urban centres in search of gainful employment in industry. The redistribution of paid agricultural labour to industry created a shortage of unpaid domestic care for disabled and dependent persons whose caregivers also became occupied with paid industrial labour. The taken-for-granted economy of care (previously unpaid and supported by families and small rural communities) was disrupted, and industrialised communities suffered ballooning levels of homelessness and poverty as a consequence of an industrialised social structure.
697:"Independent Living does not mean that we want to do everything by ourselves, do not need anybody or like to live in isolation. Independent Living means that we demand the same choices and control in our every-day lives that our non-disabled brothers and sisters, neighbors and friends take for granted. We want to grow up in our families, go to the neighborhood school, use the same bus as our neighbors, work in jobs that are in line with our education and interests, and raise families of our own. We are profoundly ordinary people sharing the same need to feel included, recognized and loved." 685:) and of course, early friends and collaborators in the 1970s (Julie Ann Racino) and university and government supporters throughout the 1980s and 1990s. Ed Roberts was a quadriplegic who dealt with discrimination in many different aspects of his life. His fight for acceptance in schools, however, is what Roberts is most well known for. In high school, Roberts was stopped from graduating because he could not complete his gym requirement, as he was paralyzed and spent most of his time in an 36: 2415: 520: 2425: 725:. Neoliberal thinkers oppose state interventions such as institutional care, promoting competitive market-based care delivery systems as cost-effective solutions to care for dependent and disabled persons. With support from both movements, community care gained popularity as a moral and cost-effective alternative to institutional care. 797:, and are run and controlled by persons with disabilities. According to the IL approach, the example of a peer, somebody who has been in a similar situation, can be more powerful than a non-disabled professional's interventions in analyzing one's situation, in assuming responsibility for one's life and in developing coping strategies. 705:
Canada's history of independence, home living, and the independent living movement can be traced back to the industrial revolution of the 19th century. The industrial revolution precipitated rapid changes in the structure of society and the paid and unpaid labour economies. The distribution of labour
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contribute to negative attitudes towards people with disabilities, portraying them as sick, defective and deviant persons, as objects of professional intervention, or as a burden for themselves and their families. These images have consequences for disabled people's opportunities for raising families
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These newer forms of institutional care attempt to maximise independent living while minimising care provided, both to support disabled and dependent person's identified needs and to control costs in the formal care economy. Unmet needs of deinstitutionalised care-dependent people may be absorbed by
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Urban communities pushed governments for an ethical solution to the problem of uncared for disabled and dependent persons. Provincial governments responded by building and funding medical institutions, however, institutional care was deeply flawed. Institutionalised care created a paternalistic and
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There is a fundamental set of services (Core Services) found in all of the Centers, but there is some variation in the programs that are offered, the funding sources, and the staffing, among other things. Depending on the public services in the community, Centers might assist with housing referral
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In the late 20th century, a social movement called the independent living movement fought to re-identify disabled and dependent persons as people with beliefs, values, dreams, and identities that extended beyond their medical diagnoses. The overarching goal of the movement was to gain choice and
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Deinstitutionalisation coincided with an economic downturn in the 1980s. The goals of the independent living movement - choice, control, and quality care - were essentially co-opted by neoliberal ideals of cost-control, self-sufficiency, and minimalist state intervention. Deinstitutionalisation
804:– can learn to take more initiative and control over their lives. For example, peer support is used in Independent Living Skills classes where people living with their families or in institutions learn how to run their everyday lives in preparation for living by themselves. 740:
Home care, or home-based community care, came into effect in the 1980s in most Canadian Provinces as one policy solution to bridge the gap between institutional and community care. The transition is ongoing and contentious. Home care is not covered under the 1984
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independent, or at least have families that could provide support. Community care has been structured as a compromise between neoliberal values and the lived realities of disabled and dependent persons of the independent living movement.
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occurred alongside health and welfare service restructuring in a concerted effort to reduce public spending and improve the efficiency of formal care. Service reductions were justified by neoliberal beliefs that all people
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developed by people with disabilities themselves. The first Independent Living ideologists and organizers were people with extensive disabilities (e.g.,
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segregated system that medicalised the identities of disabled and dependent persons and actively participated in the abuse of their human rights.
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control for dependent and disabled persons in the delivery of health and social care through state-supported community re-integration and care.
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Illario, Maddalena; Vollenbroek-Hutten, Miriam M. R.; Molloy, D. William; Menditto, Enrica; Iaccarino, Guido; Eklund, Patrik (14 June 2018).
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DiGennaro Reed, Florence D.; Strouse, Michael C.; Jenkins, Sarah R.; Price, Jamie; Henley, Amy J.; Hirst, Jason M. (11 June 2014).
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families and communities via the unpaid care economy, into existing systems of acute and primary care, or be left unaddressed.
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With the rise in Senior population, Independent Living facilities have risen in popularity as an option for aging citizens.
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In most countries, proponents of the Independent Living Movement claim preconceived notions and a predominantly
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According to the IL Movement, with peer support, everyone – including persons with extensive
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DeJong, Gerben (1979). "Independent Living: From Social Movement to Analytic Paradigm".
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Housing and community arrangements that maximize independence and self-determination
2310: 2178: 2138: 1713: 1682: 928: 790: 603: 430: 379: 305: 2388: 1814: 682: 466: 2383: 2198: 1896: 1882: 1596: 1260: 1181:. Ontario Ministry of Children, Community and Social Services. March 18, 2018. 966: 951:"Barriers to Independent Living for Individuals with Disabilities and Seniors" 858: 794: 670: 627: 591: 583: 448: 320: 96: 2183: 1657: 1582: 1445: 1244: 809: 686: 678: 623: 607: 310: 1409:"Resetting normal: Women, decent work, and Canada's fractured care economy" 1326: 1268: 1035: 1016: 984: 2315: 1062: 662: 579: 1994: 1677: 587: 435: 116: 610:, independent living is seen as a step in the continuum of care, with 1547: 649:, which began in the 1960s. The IL Movement works at replacing the 1151: 2041:
International Classification of Functioning, Disability and Health
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Canadian Journal on Aging / La Revue Canadienne du Vieillissement
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The independent living movement found significant support for
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in January 2012. All these organisations subscribe to the
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deal primarily with USA and Europe and do not represent a
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Timeline of disability rights outside the United States
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denounced human rights violations of disabled people.
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Convention on the Rights of Persons with Disabilities
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and rehabilitation experts' concepts of integration,
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ABC-CLIO Companion to the Disability Rights Movement
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British Council of Organisations of Disabled People
1499: 1471: 919:Timeline of disability rights in the United States 1446:"Independent Living for Disabilities and Seniors" 1376:Campanella, D.; Bower, S. S. (November 6, 2013). 808:and adaptation, personal assistance referral, or 645:The Independent Living Movement grew out of the 1083: 1081: 931:– social integration beyond independent living 721:through another ideological movement known as 2036:Declaration on the Rights of Disabled Persons 1867: 1567: 1075:Richard Scotch, www.jstor.org/stable/3350150. 814:legislation that promotes equal opportunities 552: 43:The examples and perspective in this article 8: 1506:. Santa Barbara, California: ABC-CLIO, Inc. 1115:Richard Scotch, www.jstor.org/stable/3350150 781:was founded by disability activists, led by 2424: 2225:Augmentative and alternative communication 1984: 1874: 1860: 1852: 1574: 1560: 1552: 559: 545: 92: 1478:. Philadelphia: Temple University Press. 1316: 1093:A Disability History of the United States 1025: 1015: 974: 81:Learn how and when to remove this message 1536:) is being considered for deletion. See 1349:Canadian Healthcare Association (2009). 2260:Disproportionality in special education 1742:Nursing home care in the United Kingdom 1425:cripple tribunal on disabilityworld.org 1305:Health and Social Care in the Community 941: 789:. 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(2006). 1152:http://www.independentliving.org 519: 518: 416:National Telecommuting Institute 34: 1752:Home care in the United Kingdom 1709:Caring for people with dementia 904:Post-Polio Health International 827:(BCODP, 1981–2017) started the 2245:Disability and LGBT identities 1810:Unlicensed assistive personnel 1757:Home care in the United States 1474:The Disability Rights Movement 1407:Faraday, F. (April 15, 2020). 1199:Galer, D. (February 5, 2015). 773:Centers for Independent Living 421:Society for Disability Studies 278:Unlicensed assistive personnel 1: 2057:Services for mental disorders 1841:Distress in cancer caregiving 1131:Boom: A Journal of California 955:Behavior Analysis in Practice 779:Center for Independent Living 18:Center for Independent Living 2062:Services for disabled people 355:Supplemental Security Income 117:Ableism / Disablism 2345:Arts, media, culture, sport 1795:Direct support professional 1737:Nursing home care in Canada 1221:Dyck, E. (April 28, 2014). 1175:"The Industrial Revolution" 370:Disabled students allowance 365:Disability Living Allowance 57:, discuss the issue on the 2476: 2372:Disability in horror films 2164:Activities of daily living 1617:Activities of daily living 914:Social model of disability 869:Disability rights movement 837:Social Model of Disability 802:developmental disabilities 647:disability rights movement 632:Social Model of Disability 619:medical view of disability 229:Disability rights movement 2409: 1470:Fleischer, Doris (2001). 1261:10.1017/S0714980816000672 1205:The Canadian Encyclopedia 1004:Journal of Aging Research 967:10.1007/s40617-014-0011-6 889:Mainstreaming (education) 874:Independent senior living 375:Disabled Persons Railcard 2265:Sexuality and disability 2240:Disability and disasters 2152:Structural and assistive 1622:Long-term care insurance 1538:templates for discussion 1223:"Deinstitutionalization" 1127:"The People's Sidewalks" 388:the Severely Handicapped 344:Socioeconomic assistance 254:Sexuality and disability 2379:Disability in the media 2250:Disability and religion 2189:Personal Care Assistant 899:Person-centred planning 879:Intellectual disability 503:Disability in the media 2362:Disability in the arts 2255:Disability and poverty 2194:Physical accessibility 1824:Support for caregivers 1702:Special considerations 719:deinstitutionalisation 622:of their own, getting 586:, a way of looking at 493:Disability in the arts 316:Physical accessibility 1953:driver rehabilitation 1729:Caregiving by country 1179:Government of Ontario 1051:Arch Phys Med Rehabil 763:Amnesty International 614:being the next step. 244:People-first language 222:Societal implications 2286:Models of disability 2270:Youth and disability 2235:Invisible disability 2184:Orthotics and braces 2169:Assistive technology 1981:Rights, law, support 1693:Retirement community 1612:Occupational therapy 1498:Pelka, Fred (1997). 1434:Retrieved 2012-01-21 1017:10.1155/2016/8062079 894:Occupational therapy 833:Disability Rights UK 787:Berkeley, California 606:. In the context of 311:Orthotics and braces 296:Assistive technology 63:create a new article 55:improve this article 1938:Learning disability 1805:Sandwich generation 1783:Types of caregivers 1636:Living arrangements 1590:Background concepts 1243:Barken, R. (2017). 777:In 1972, the first 681:, Beverly Chapman, 596:equal opportunities 272:Personal assistance 179:Learning disability 2352:Disability culture 2279:Disability studies 2174:Independent living 1902:Disability studies 1648:Home modifications 1643:Independent living 1544:Independent living 1430:2010-11-23 at the 1385:Parkland Institute 1150:Dr. Adolf Ratzka, 600:self-determination 578:), as seen by its 572:Independent living 386:Assured Income for 2455:Disability rights 2437: 2436: 2306:Neuroqueer theory 2209:Web accessibility 2159:Accessible toilet 2147: 2146: 2000:Disability rights 1995:Ableism/disablism 1849: 1848: 1800:Family caregivers 757:Analogous to the 743:Canada Health Act 701:History in Canada 651:special education 569: 568: 331:Web accessibility 291:Accessible toilet 174:Special education 112:Disability theory 105:Theory and models 91: 90: 83: 65:, as appropriate. 16:(Redirected from 2467: 2427: 2426: 2417: 2416: 2399:Special Olympics 2291:Inspiration porn 2204:Universal design 2005:Pejorative terms 1985: 1948:Physical therapy 1876: 1869: 1862: 1853: 1836:Caregiver stress 1719:End-of-life care 1688:Residential care 1576: 1569: 1562: 1553: 1517: 1505: 1490: 1489: 1477: 1467: 1461: 1460: 1458: 1456: 1444:Lucero, Adam K. 1441: 1435: 1422: 1416: 1415: 1413: 1404: 1389: 1388: 1382: 1373: 1358: 1357: 1355: 1346: 1331: 1330: 1320: 1296: 1281: 1280: 1240: 1227: 1226: 1218: 1209: 1208: 1196: 1183: 1182: 1171: 1154: 1148: 1142: 1141: 1139: 1137: 1122: 1116: 1113: 1107: 1106: 1085: 1076: 1073: 1067: 1066: 1046: 1040: 1039: 1029: 1019: 995: 989: 988: 978: 946: 767:cripple tribunal 759:Russell Tribunal 561: 554: 547: 522: 521: 462:Paralympic Games 457:Special Olympics 326:Universal design 249:Pejorative terms 93: 86: 79: 75: 72: 66: 38: 37: 30: 21: 2475: 2474: 2470: 2469: 2468: 2466: 2465: 2464: 2440: 2439: 2438: 2433: 2405: 2340: 2274: 2213: 2143: 2117:Activist groups 2112: 2066: 2045: 2009: 1976: 1916: 1885: 1880: 1850: 1845: 1819: 1778: 1723: 1697: 1653:Assisted 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Index

Center for Independent Living
worldwide view
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Disability
Disability theory
Ableism / Disablism
Medical model
Social model
Other models
Mainstreaming
Individualized Education Program (IEP)
Special needs
Special school
Special education
Learning disability
Physical
Occupational
Speech
Disability rights movement
Inclusion
Normalization
People-first language
Pejorative terms
Sexuality and disability
Women's health
Unlicensed assistive personnel
ADLs

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