238:. The article stated how Stefan McDonough, executive director of genetics at Pfizer, described the Inspire platform as "an extraordinary resource" because patients are already appropriately consented and are eager to share their medical information to advance treatments. "I would be wearing out multiple sets of shoes going from investigator to investigator, clinician to clinician" to collect this sort of patient data, McDonough was quoted as saying.
27:
351:
profiled Loew in April 2017 around the time
Inspire's membership surpassed one million patients and caregivers. The article states, "Loew and his company are attached to the surge of patient assertiveness, with more people questioning their health care and taking more of the responsibility out of the
142:
Founded in 2005, the company serves millions of patients and caregivers in several hundred online support groups. As of the end of 2020, Inspire had more than two million registered members. These online groups are mostly organized around a single condition, such as psoriasis, ovarian cancer, or lung
330:
Health technology industry executive John Glaser cited
Inspire in an industry magazine column citing the importance of healthcare social networks to clinical research. "In addition to helping patients find and take advantage of clinical trials, health care social networks also provide an opportunity
335:
to launch new research into the condition, which led to the creation of a SCAD registry, a key step in the further study of this rare disease. Indeed, there is tremendous potential for online patient communities to contribute to the project of a continuously learning health system."
355:
Brian Loew has been named to PharmaVOICE magazine's "PharmaVOICE 100" three times, in 2014, 2016 and 2017, for his contributions to the life sciences industry." As of 2020, Loew sits on the boards of directors of the Robert
Packard Center for ALS Research at
213:
Examples of promotional projects that
Inspire would provide on behalf of a pharmaceutical client include branded or unbranded banner ads that Inspire serves in its online communities and the delivery of targeted, permission-based emails to community members.
209:
Inspire generates company revenue from market research and promotional services to pharmaceutical companies. Inspire's market research services include online surveys, user-generated content analysis, and moderated online private research communities.
161:
Brian Loew founded
Inspire. It was first known as ClinicaHealth until March 2008. In 2022, the Inspire community had over 2.5 million registered members, more than 40% of whom are affected by cancer. Inspire had about 80,000 members in 2008.
1017:
383:
418:
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Loeb, Stacy; Mihalcea, Rada; Perez-Rosas, Veronica; Xu, Alex; Taylor, Jacob; Byrne, Nataliya; Walter, Dawn; Ness, Marina; Robbins, Rebecca; Zhang, Sylvia; Killeen, Trevor; Natesan, Divya; Borno, Hala T. (2021).
222:
Healthcare companies and institutions have worked with
Inspire on research projects that focus on rare disease populations or populations of patients who have advanced disease, such as metastatic lung cancer.
445:
747:"Three randomized controlled trials evaluating the impact of "spin" in health news stories reporting studies of pharmacologic treatments on patients'/Caregivers' interpretation of treatment benefit"
331:
for participant-led research," Glaser wrote, "in which members initiate new fields of study. For instance, Inspire members with spontaneous coronary artery dissection persuaded researchers at the
344:
In
December 2020, the nonprofit organization the Invisible Disabilities Association honored Brian Loew with the 2020 Corporate Award for his dedication to patient advocacy organizations.
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572:
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959:
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In
January 2021, Marina Ness, Inspire's Director of Research, was an author on a paper in European Urology Open Science, the Open Access journal of the
173:
Inspire partners with multiple nonprofit patient advocacy organizations, such as the
Bladder Cancer Advocacy Network, National Osteoporosis Foundation,
317:
515:
384:
Transforming
Unstructured Social Media Content to Meaningful Insights: A Three-Prong Strategic Offering to Discover, Engage, and Accelerate Research
696:
Lee, Christine; St Clair, Christopher; Merenda, CDR Christine; Araojo, Capt Richardae; Ray, Sara; Beasley, Derrick; Hinton, Radm Denise (2020).
298:
542:
Perceptions of stage IV NSCLC patients and caregivers regarding severity of symptoms and willingness to participate in supportive care trials
324:
745:
Boutron, Isabelle; Haneef, Romana; Yavchitz, Amélie; Baron, Gabriel; Novack, John; Oransky, Ivan; Schwitzer, Gary; Ravaud, Philippe (2019).
293:
correspondence about ways to close the"terminology gap" between medical professionals and patients. Also in 2018, Inspire collaborated with
267:
260:
182:
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In 2015, members of Inspire's lung cancer group self-organized and submitted a request that helped changed treatment guidelines from the
1073:
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647:"Patient-Reported Outcomes in Online Communications on Statins, Memory, and Cognition: Qualitative Analysis Using Online Communities"
540:
894:
Ransohoff, Julia D.; Nikfarjam, Azadeh; Jones, Erik; Loew, Brian; Kwong, Bernice Y.; Sarin, Kavita Y.; Shah, Nigam H. (2018).
503:
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Early employees include Amir Lewkowicz, Walter Wlodarczyk, Beth McNaughton, and contributors Nate Shue and David Marshall.
235:
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302:
271:
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698:"Assessment of public and patient online comments in social media and food and drug administration archival data"
190:
189:, WomenHeart: The National Coalition for Women with Heart Disease, ThyCa: Thyroid Cancer Survivors' Association,
174:
146:
131:
598:"Leveraging Social Media as a Thermometer to Gauge Patient and Caregiver Concerns: COVID-19 and Prostate Cancer"
357:
367:
named Amir Lewkowicz as a keynote speaker at its Healthcare Social Media Summit 2016 in Melbourne, Australia.
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and head of the INSERM- METHODS team within the Centre of Research in Epidemiology and Statistics (CRESS), on
186:
1031:
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1063:
528:"Online Communities Meet Clinical Trials: Inspire’s Co-Founder on Social Networking, Health 2.0, and Trust
134:
for patients and caregivers, and connects patients to life science companies for the purpose of research.
999:
847:"Critical Choices: What Information do Patients Want when Selecting a Hospital for Cancer Surgery?"
516:"Online Patient Communities Grow Up – A Conversation with Brian Loew, CEO of Inspire" November 2020
404:
896:"Detecting Chemotherapeutic Skin Adverse Reactions in Social Health Networks Using Deep Learning"
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Pfizer Turns to Health Social Network to Find Patients With Rare Lung Cancer Genetic Variants
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Using data from an online health community to examine the impact of prostate cancer on sleep
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published a research letter, based on research involving Stanford University and Inspire.
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419:"More than a million patients flock to this website. Drug companies are in hot pursuit"
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Yang, A.; Chimonas, S.; Bach, P. B.; Taylor, D. J.; Lipitz-Snyderman, A. (2018).
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is an Arlington, Virginia-based healthcare social network. It builds and manages
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364:
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193:, Lupus Foundation of America, Encephalitis Global, Neurofibromatosis Network,
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Timimi, Farris; Ray, Sara; Jones, Erik; Aase, Lee; Hoffman, Kathleen (2019).
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782:
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682:
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1018:"Transforming Unstructured Social Media Content to Meaningful Insights"
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like Inspire are referenced as components of the empowered patient, or
231:
663:
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In October 2020, Precision Oncology News, a publication owned by
316:(NPR) reported on the Stanford/Inspire study with the article,
201:
to provide online communities for the nonprofit organizations.
446:"Here's how patients can take a larger part in their own care"
313:
504:
The One With Brian Loew, Out of Patients with Matthew Zachary
245:
research paper about the effect of prostate cancer on sleep.
945:"How A Group Of Lung Cancer Survivors Got Doctors To Listen"
289:
In April 2018, an Inspire data scientist was an author of a
798:"Plain-language medical vocabulary for precision diagnosis"
1048:
266:
Earlier in 2019, an Inspire researcher was an author on a
960:"Five Reasons to 'Like' Patients' Use of Social Media"
1032:"Program - Healthcare & Social Media Summit 2016"
318:
How Social Media Can Reveal Overlooked Drug Reactions
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study involving the use of statins, and memory loss.
181:, Kidney Cancer Association, Scleroderma Foundation,
71:
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98:
88:
80:
66:
54:
46:
36:
169:Partnerships with nonprofit advocacy organizations
230:, detailed a research project involving Inspire,
444:Allard Levingston, Suzanne (November 30, 2015).
702:Research in Social and Administrative Pharmacy
241:Earlier in 2020, Inspire data was cited in a
8:
286:," a study about "spin" in healthcare news.
19:
796:Vasilevsky, Nicole A.; et al. (2018).
472:"The Benefits of Online Health Communities"
489:10.1001/virtualmentor.2014.16.4.stas1-1404
274:. Also in 2019, Inspire collaborated with
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405:Brian Loew: Inspiring Patient Connections
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301:in research that led to a paper in the
299:Memorial Sloan Kettering Cancer Center
255:In November 2019, Inspire teamed with
325:National Comprehensive Cancer Network
278:, a professor of epidemiology at the
7:
651:Journal of Medical Internet Research
268:Journal of Medical Internet Research
261:Journal of Medical Internet Research
177:, Ovarian Cancer Research Alliance,
1069:American social networking websites
1000:"Providing a Voice for the Patient"
943:Hobson, Katherine (March 1, 2015).
195:American Sexual Health Association
14:
197:, Ehlers-Danlos Society, and the
183:Alzheimer's Foundation of America
417:Heath, Thomas (April 28, 2017).
360:, and New Jersey Goals of Care.
270:paper with researchers from the
986:"Brian Loew receives IDA award"
185:, Tuberous Sclerosis Alliance,
958:Glaser, John (11 April 2016).
548:, 28 June 2012, archived from
1:
715:10.1016/j.sapharm.2019.10.009
602:European Urology Open Science
851:Journal of Oncology Practice
303:Journal of Oncology Practice
272:Food and Drug Administration
31:Logo of the company Inspire.
912:10.1001/jamaoncol.2017.5688
614:10.1016/j.euros.2020.12.008
104:; 19 years ago
1090:
280:Paris Descartes University
236:Boston Children's Hospital
1074:American medical websites
814:10.1038/s41588-018-0096-x
764:10.1186/s12916-019-1330-9
352:hands of professionals."
191:American Liver Foundation
175:American Lung Association
147:Online health communities
132:online health communities
42:Social networking service
24:
1049:https://www.inspire.com
16:American social network
340:Awards and recognition
476:AMA Journal of Ethics
314:National Public Radio
205:Products and services
863:10.1200/JOP.17.00031
482:(4): 270–274. 2014.
187:Men's Health Network
555:on 22 December 2014
308:Earlier that year,
118:Current status
113:(as Clinica Health)
21:
966:on 19 August 2016
502:Zachary, Matthew.
243:BJU International
218:Research projects
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102:January 2005
62:Walter Wlodarczyk
47:Available in
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179:Genetic Alliance
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94:2,000,000 (2020)
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906:(4): 581–583.
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365:Mayo Clinic
333:Mayo Clinic
257:Mayo Clinic
1058:Categories
757:(1): 105.
371:References
295:ProPublica
153:movement.
58:Brian Loew
970:10 August
732:204965843
458:0190-8286
431:0190-8286
228:GenomeWeb
151:e-patient
930:29494731
881:30059273
832:29632381
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327:(NCCN).
252:family.
143:cancer.
138:Overview
99:Launched
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608:: 1–4.
157:History
128:Inspire
109:2005-01
107: (
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50:English
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232:Pfizer
121:Active
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553:(PDF)
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259:on a
90:Users
972:2016
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679:PMID
628:PMID
561:2016
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363:The
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Text is available under the Creative Commons Attribution-ShareAlike License. Additional terms may apply.
