Knowledge (XXG)

Leper colony stigma

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152:(4th/5th century AD)". Gradually the name lepra (leprosy) replaced elephantiasis, which ensured the stigmatisation of leprosy as an "unclean disease" with divine punishment for previous sins—a tragic misconception which persisted up to modern times. The disease was seen as unclean, highly contagious and left people horrifically scarred from its effects, this allowed for the sufferers to become easily stigmatized against. From researching various leper colonies from around the world the disease has been most prevalent in those who live in poor areas, with poor sanitation and drinking water. The disease also became connected to being poor, which goes hand in hand with the idea that it was a result of being unclean. This stigmatizing of people due to misconceptions of how the disease is transmitted and prejudices against the people who more commonly contract the disease can be seen in other diseases today such as 74:, also known as the Island of Living Dead. Most of these people lived in isolation and engaged in crude agriculture and fishing and most lived in great poverty. As time went on and medical advancements were made towards the curing of leprosy, the island welcomed people with non-leprosy as settlers, many of whom were the relatives and friends of the pre-existing patients. As the disease became less of a threat and cures and treatments became available, the stigma behind the disease began to lessen and the quality of life for those on the island improved. “Biomedical research facilities have been built there which provide no-fee medical consultation, diagnostic and treatment services to patients with leprosy and other skin diseases.” As the fear aspect of the disease lessened the community became more accepting in the Philippines and the same efforts to distort history as in Hawaii are not existent as the 169:
isolation and seclusion associated with those who have it. The study of social stigma attached to disease is still a relevant topic and as the authors referenced in this article have concluded that as time passes and understanding of the disease scientifically is gained and cures and treatments become available, the stigma associated with the disease lessens. When people understand something they cease to fear it and become more accepting. That is not to say, however, that there are not still those who hold prejudice and
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Chinese experts now recommend that the small and isolated leprosy colonies should be closed and that newer more modern centres should be established that are more integrated within society. The newly established centres should act as place for reference, training and research on the disease. As in other countries once the disease became treatable much of the stigma was removed from the sufferers of the disease and an effort to increase of the lifespan and end the isolation of these people became a
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indicated that after entry in the institution, these patients got their broken family bonds, the citizens lost their rights, regarding the situation, they took upon a new life, in the new environment. These patients had difficulty receiving proper care due to the nature of their disease during the time periods these colonies operated. “Leprosy, fraught with
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rights struggles and integration. By recognizing the issues and the rights of those who were cast as criminals for simply being ill with an infectious disease and segregated against their will, it can aid present society with the future handling of people with infectious diseases; a main theme when discussing the stigmas attached to leprosy colonies.
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that was on the verge of collapse. The leprosy colonies had a shortage of medical materials and the health of these people was greatly neglected. This was a result of the stigma that those infected received from the general public and holds true to form of other similar colonies throughout the world.
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as stigmas attached to these diseases. In a comparative study between AIDS and leprosy there was determined to still be stigmas attached to each, with AIDS receiving a more constant form of stigmatization but with leprosy receiving the more harsh form due to the visual aspects of the disease and the
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and the inability to treat the disease was the cause of this stigma towards those infected. “It was found that leprosy causes a great impact on the everyday lives of these people through the stigma and prejudice related to lack of knowledge about the transmission, control and cure of the disease and
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did not repeal the law until 1969.” The historian Carolyn Strange argues that the history of this island with its forced segregation, stigma and death contrasted with its present state as a tourist destination and as a sacred place for Christian pilgrimages which makes this island a symbol for human
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the isolation of people with leprosy was compulsory by law from the years 1920-1962 but in reality operated in this fashion until the 1980s. This, was largely based on the stigmas associated with the disease. Data were collected and were further analyzed, utilizing the Stigma reference. The results
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were formed. The inhabitants of these colonies had very little legal recourse in preventing their exclusion and, even after they were treated and cured, many had trouble reintegrating into society. Even by the 1960s, when leprosy was highly treatable and curable, it still resulted in repulsion, and
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Leprosy has existed in the world since ancient times and continues to exist in the world today, despite being largely curable and treatable. The stigmas associated with the disease have impacted on those suffering from leprosy in a highly negative way that up until recently was socially accepted.
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the exclusion of sufferers, by the general populace. As leprosy became curable, the focus of study shifted towards investigating the social aspects of the disease. This has become relevant due to the fact that the disease is making a resurgence and is proving resistant to previous remedies.
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areas or special institutions has been the general protocol since ancient times and was the recommended course of action by the Leprosy Conference of Berlin 1897. As a result, the exclusion and quarantining of people infected with leprosy became law, hence
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Stevelink, S., A.M., H., and V. Augustine. "Stigma and social participation in Southern India: Differences and commonalities among persons affected by leprosy and persons living with HIV/AIDS." Psychology, Health & Medicine 16, no. 6 (December 2011):
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conditions with overcrowding and poor nutrition. As in other countries with a history of a leprosy endemic, these factors are consistent in China as they are with other nations. Most leprosy colonies were located in isolated places with poor
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and stigma in the early 20s was treated for decades with stringent policies of compulsory isolation of patients in hospitals colonies. Because of prejudice, there was difficulty in hiring staff to maintain these establishments.” The
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Patricia, Teixeira Celestino, et al. "Hansen's disease: stigma and prejudice faced by inmates of Casa de Acolhida Souza Araujo in the city of Rio Branco ." Revista Nursing 14, no. 166 (March 2012): 164-170.
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RETIEF, FRANÇOIS, and LOUISE CILLIERS. "Die ontstaan en ontwikkeling van melaatsheid in die antieke tyd. (Afrikaans)." Suid-Afrikaanse Tydskrif Vir Natuurwetenskap En Tegnologie 28, no. 1 (March 2009):
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DL Ribas, et al. "Leprosy: stigma and prejudice lived by institucionalized patients in Santa Catarina State, Brazil (1940-1960) ." Revista Brasileira De Enfermagem 61, (November 2, 2008): 708-712.
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Xiang-Sheng, Chen, Li Wen-Zhong, Jiang Cheng, and Ye Gan-Yun. 2001. "Leprosy in China: epidemiological trends between 1949 and 1998." Bulletin Of The World Health Organization 79, no. 4: 306.
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GusmĂŁo, APB, and MJM Antunes. "To be with leprosy and to work as a nurse: histories of fight and overcoming ." Revista Brasileira De Enfermagem 62, no. 6 (November 2009): 820-824.
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Jianping, Shen, Liu Musang, and Zhou Min. "Current situation of leprosy colonies/leprosaria and their future in P.R. China." Leprosy Review 78, no. 3 (September 2007): 281-289
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Handog, Evangeline B., Ma. Teresita G. Gabriel, and Cheryl C. Co. "Leprosy in the Philippines: a review." International Journal of Dermatology 50, no. 5 (May 2011): 573-581
90:, various causes contributed to the long-term existence and spread of leprosy. In the past, people frequently lived in poverty under poor 157: 53:
passed “An Act to Prevent the Spread of Leprosy” and effectively defined people diagnosed with leprosy as criminals. The State of
369: 201:"Perceived social restriction in leprosy-affected inhabitants of a former leprosy colony in Northeast Brazil" 364: 49:
was a legally mandated place of banishment for citizens with leprosy. “It became so after 1865, when the
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was such that the ritualised banning of lepers became incorporated into the treatment of
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still exists today and helps house and treat the current population with skin disorders.
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Strange, Carolyn (Summer 2004). "Symbiotic Commemoration: The Stories of Kalaupapa".
174: 145: 21: 234: 24:, isolation and social exclusion. Expulsion of individuals infected with leprosy to 30: 67: 161: 25: 122: 96: 226: 264: 153: 217: 200: 173:
against those who do have contagious diseases and use it as a forum of
100: 17: 165: 117: 91: 71: 54: 87: 199:FELDMEIER, HERMANN; et al. (March 2010). 8: 194: 192: 190: 297: 295: 66:In 1904 a leper colony was founded in the 20:and people with the disease have suffered 16:There has, historically, been fear around 246: 244: 216: 148:-- against the advice of physicians like 276: 274: 259:(1). Indiana University Press: 86–117. 186: 7: 211:(1). Academic Search Elite: 69–78. 14: 131:the ancient history it carries.” 1: 386: 70:on a remote island called 140:“The influence of the 265:10.1353/ham.2004.0006 253:History & Memory 76:Cullion Leper Colony 45:, a small island of 218:10.47276/LR.81.1.69 150:Caelius Aurelianus 51:Kingdom of Hawaii 377: 370:Leprosy in China 349: 345: 339: 336: 330: 326: 320: 317: 311: 308: 302: 299: 290: 287: 281: 278: 269: 268: 248: 239: 238: 220: 196: 142:Christian Church 99:routes and with 31:leprosy colonies 385: 384: 380: 379: 378: 376: 375: 374: 355: 354: 353: 352: 346: 342: 337: 333: 327: 323: 318: 314: 309: 305: 300: 293: 288: 284: 279: 272: 250: 249: 242: 198: 197: 188: 183: 137: 114: 84: 64: 62:The Philippines 40: 12: 11: 5: 383: 381: 373: 372: 367: 365:Leper colonies 357: 356: 351: 350: 340: 331: 321: 312: 303: 291: 282: 270: 240: 205:Leprosy Review 185: 184: 182: 179: 136: 133: 128:misinformation 113: 110: 97:transportation 83: 80: 63: 60: 39: 36: 13: 10: 9: 6: 4: 3: 2: 382: 371: 368: 366: 363: 362: 360: 344: 341: 335: 332: 325: 322: 316: 313: 307: 304: 298: 296: 292: 286: 283: 277: 275: 271: 266: 262: 258: 254: 247: 245: 241: 236: 232: 228: 224: 219: 214: 210: 206: 202: 195: 193: 191: 187: 180: 178: 176: 175:class warfare 172: 167: 163: 159: 155: 151: 147: 146:elephantiasis 143: 135:Leprosy today 134: 132: 129: 124: 119: 111: 109: 107: 102: 98: 93: 89: 81: 79: 77: 73: 69: 61: 59: 56: 52: 48: 44: 37: 35: 32: 27: 23: 19: 343: 334: 324: 315: 306: 285: 256: 252: 208: 204: 177:and racism. 171:discriminate 138: 115: 85: 65: 41: 15: 68:Philippines 26:quarantined 359:Categories 181:References 162:homophobia 123:prejudice 43:Kalaupapa 348:695-707. 235:17025094 227:20496571 106:mandate 101:housing 18:leprosy 233:  225:  166:racism 118:Brazil 112:Brazil 92:health 72:Culion 55:Hawaii 47:Hawaii 38:Hawaii 22:stigma 231:S2CID 160:with 88:China 82:China 329:1-12 223:PMID 164:and 158:SARS 156:and 154:AIDS 261:doi 213:doi 116:In 86:In 361:: 294:^ 273:^ 257:16 255:. 243:^ 229:. 221:. 209:81 207:. 203:. 189:^ 108:. 267:. 263:: 237:. 215::

Index

leprosy
stigma
quarantined
leprosy colonies
Kalaupapa
Hawaii
Kingdom of Hawaii
Hawaii
Philippines
Culion
Cullion Leper Colony
China
health
transportation
housing
mandate
Brazil
prejudice
misinformation
Christian Church
elephantiasis
Caelius Aurelianus
AIDS
SARS
homophobia
racism
discriminate
class warfare

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