192:«The project identifies the specific supports that the severely disabled person needs, starting from the health, social and social-healthcare services . The personalised project contains the project budget, as a set of all the human, economic, instrumental resources that can be used in a flexible, dynamic and integrated way. The personalised project is defined by ensuring the widest possible participation of the person with severe disability, taking into account his/her wishes, expectations and preferences and also providing for his/her full involvement in the subsequent monitoring and evaluation. Where the person with severe disability is not in a position to express his or her full will, he or she is supported by his or her parents or those who protect their interests.»
146:"Two-year action programme for the promotion of the rights and integration of people with disabilities", adopted for the first time by the Italian Government in 2013, reinforces the importance that lies in the drafting of the Life project of the person with disabilities. As underlined by Anffas, this program recognizes in the full implementation of the life project a real "perfect subjective right and therefore fully enforceable" (in Italian ""diritto soggettivo perfetto e quindi pienamente esigibile"). Within the programme, specific areas of action are identified as priorities with respect to the development of interventions aimed at ensuring respect for the rights of persons with disabilities. These action lines contribute to the achievement of the objectives of the
87:(Law no. 104 of February 5, 1992, Article 3) was introduced for the first time in the Italian regulatory system by Law no. 328 of 8 November 2000 and it represents the heart of Law no. 112 of 22 June 2016, which has among its fundamental principles the activation of paths to promote the well-being, full social inclusion and autonomy of people with disabilities. A systemic approach to the Life Project also represents the guarantee element of rights and quality of life aimed at giving full effect to the principle of social inclusion expressed in Article 19 of the
202:"After us" (in Italian "Dopo di Noi") Law promotes a real paradigm shift recognizing in the subsidiary matrix necessary for the realization of life projects a fundamental and propaedeutic element for the realization of "After us" (in Italian "Dopo di Noi") in "during us" (in Italian "durante noi") activating projects triggered by a "bottom-up" approach. As argued by Bollani, "Law no. 112 designs "After us" as a co-design action that involves all these stakeholders (parents and children, private social and public service operators) to work together".
127:«In its definition and implementation, the Life project thus becomes a dynamic process capable of adapting to the needs of people who change in different stages of life, ensuring continuity in the processes. Its construction is never done by one person. It is the result of interaction between several people: the person with a disability, their family and who is in charge of her/him. We would therefore have aspects expressed, aspects detected and shared.»
22:
176:
The centrality of the Life
Project (intended as "individual project" referred to in Article 14 of Law no. 328 of 8 November 2000) appears to be among the founding principles of Law no. 112 of 22 June 2016, better known as "After us" (in Italian "Dopo di Noi") Law, containing "Provisions on assistance
205:
Since Life project approach is aimed at the deinstitutionalization of the person with disabilities, the housing situation in its dimension of inclusion turns out to be crucial, for this reason it is important to design innovative models that develop pathways of social inclusion aimed at the creation
137:
The potential that lies in the construction of the
Project of Life is found in the possibility of putting at the center the person who is involved in the choices related to her/his life and pathways of social inclusion. By incorporating the needs and aspirations expressed by the beneficiary within a
114:
Starting with Law no. 328 of 8 November 2000, the adoption of an innovative approach to the provision of welfare services is promoted that goes beyond the purely "assistance" perspective and centralizes actions through the creation of a real project. As argued by
Arconzo, Ragone and Bissaro, what is
184:
As argued by
Senator Annamaria Parente, rapporteur in the Senate of Law no. 112 of 22 June 2016, the Life Project is placed at the center of the law tracing a path that wants to lead to build the "After us" (in Italian "Dopo di Noi") in "during us" (in Italian "durante noi") to ensure that this can
180:
The law provides for measures of assistance, care and protection for the person with disabilities when he/she can no longer be supported by the family through a progressive taking charge of the person during the life of parents and caregivers allowing them to deal with the concern for the future of
159:
with the aim of guaranteeing the protection of the rights of persons with disabilities on the basis of the principle of equality. Among the areas of action identified by the
European Disability Strategy 2010–2020, in addition to promoting the principles of accessibility, participation and equality,
99:
The concept of Life
Project was introduced in Italy by Law no. 328 of 8 November 2000 called "Framework Law for the implementation of the integrated system of social interventions and services" which in Article 14 paragraph 2 provides for the preparation of an "individual project" aimed at the full
138:
personalized pathway, it is possible to respond through a global and concerted action among all those involved, unlike the response capacity that could arise from sectoral and distinct interventions that look at the person as the addressee of individual services without transversal coordination.
104:«Individual project includes, in addition to the diagnostic-functional assessment, care and rehabilitation services charged to the National Health Service, services to the person , as well as the economic measures necessary to overcome conditions of poverty, marginalisation and social exclusion.»
737:[Ministerial Decree of 23 November 2016, Requirements for access to the measures of assistance, care and protection borne by the Fund for the assistance of people with severe disabilities without family support, as well as allocation of resources to the Regions for the year 2016].
118:
In this direction, the definition of "individual project" adopted by Law no. 328 of 8 November 2000 focuses attention on the centrality of the person as the point of convergence of the actions implemented by the welfare services system. As stated by Marco
Rasconi, president of
787:
Cia G., Morena M., Oberti I., Pavesi A.S., (2019). L'impatto sul processo edilizio dei progetti di residenzialitĂ inclusiva per persone fragili. In (pp 73-82): Lauria M.; Mussinelli E.; Tucci F. (eds) (2020). Producing
Project. Maggioli. Santarcangelo di Romagna. 531 pp.
735:"Decreto Ministeriale 23 novembre 2016, Requisiti per l'accesso alle misure di assistenza, cura e protezione a carico del Fondo per l'assistenza alle persone con disabilità grave prive del sostegno familiare, nonché ripartizione alle Regioni delle risorse per l'anno 2016"
588:
Communication from the
Commission to the European Parliament, the Council, the European economic and social Committee and the Committee of the Regions. Union of Equality: European Commission presents Strategy for the Rights of Persons with Disabilities 2021-2030.
177:
for people with severe disabilities without family support". As supported by Anffas in the construction of the Life project lies the principle for the activation of paths to promote the well-being, full social inclusion and autonomy of people with disabilities.
115:
defined as a "project model" (in
Italian "modello progettuale") is introduced, whose actions are aimed at achieving objectives defined on the basis of a multidimensional assessment of the needs of the person who is directly involved in the path.
520:"Communication from the Commission to the European Parliament, the Council, the European economic and social Committee and the Committee of the Regions. European Disability Strategy 2010-2020: A Renewed Commitment to a Barrier-Free Europe"
150:
and the European Disability Strategy 2010–2020. The latter was defined in 2010 by the European Commission starting from the principles expressed by the Convention on the Rights of Persons with Disabilities and as an integration of the
100:
inclusion of the person with disabilities in the family and social context and within pathways aimed at school and work inclusion. It is expected that this project is prepared by municipalities in agreement with Local Health Units.
213:«the beneficiary of the project that from being the object of intervention decided by others becomes the subject of the project, in which he or she participates by right because it concerns his or her life.»
163:
In the same way the European Disability Strategy 2021-2030 identifies priority areas towards which to direct interventions to be implemented through a cross-sectoral approach, following the path traced by
160:
specific reference is made to the different areas involved in the life of the person starting from the issue related to health as well as the school and work context with a view to full social inclusion.
91:. The latter provides that every person with disabilities is guaranteed the right to full integration in the community by ensuring equal freedom of choice as well as full involvement in society life.
332:
430:[Taking charge of people with disabilities. Norms, experiences and analysis from Campania, Lombardy and Sardinia, Empowernet, FISH (Federazione Italiana per il Superamento dell'Handicap)]
492:[Decree of President of Italian Republic 12 October 2017, Adoption of the second two-year action programme for the promotion of the rights and integration of people with disabilities].
464:[Decree of President of Italian Republic of 4 October 2013, Adoption of the two-year action programme for the promotion of the rights and integration of people with disabilities].
428:"La presa in carico delle persone con disabilitĂ . Norme, esperienze ed analisi da Campania Lombardia e Sardegna, Empowernet, FISH (Federazione Italiana per il Superamento dell'Handicap)"
490:"Decreto del Presidente della Repubblica 12 ottobre 2017, Adozione del secondo programma di azione biennale per la promozione dei diritti e l'integrazione delle persone con disabilitĂ "
147:
88:
123:(Italian Union fight to muscular dystrophy), the construction and implementation of an "individual project" promotes "the global taking charge of the person with disabilities".
462:"Decreto del Presidente della Repubblica 4 ottobre 2013, Adozione del programma di azione biennale per la promozione dei diritti e l'integrazione delle persone con disabilitĂ "
156:
185:
become an "approach of all" for the construction of an integrated and proximity welfare and for which "After us" (in Italian "Dopo di Noi") Law can become a lighthouse.
168:, with particular reference to the enhancement of the principle of quality of life and the promotion of pathways to autonomy aimed at deinstitutionalization.
654:
763:
602:
680:
629:"Legge del 22 giugno 2016, n. 112, Disposizioni in materia di assistenza in favore delle persone con disabilitĂ grave prive del sostegno familiare"
165:
544:
271:[Law no. 328 of 8 November 2000, Framework Law for the implementation of the integrated system of social interventions and services].
793:
188:
The Interministerial Decree implementing Law no. 112 of 22 June 2016 defines in Article 2 paragraphs 2 and 3 the "personalized project":
706:
120:
307:
806:
237:"Legge 5 febbraio 1992, n. 104, Legge-quadro per l'assistenza, l'integrazione sociale e i diritti delle persone handicappate"
631:[Law no. 112 of 22 June 2016, Provisions on assistance for people with severe disabilities without family support].
519:
239:[Law no. 104 of February 5, 1992, Framework law for assistance, social integration and rights of disabled people].
657:[From "Dopo di Noi" Law to Coronavirus: the urgency of rethinking care for elderly and people with disabilities].
836:
269:"Legge 8 novembre 2000, n. 328, Legge quadro per la realizzazione del sistema integrato di interventi e servizi sociali"
841:
181:
their children when they will can no longer be with them in the so-called "After us" (in Italian "Dopo di Noi").
766:["After us" (in Italian "Dopo di Noi"): envisioning destiny communities or residential services?].
655:"Dalla legge sul dopo di noi al Coronavirus: l'urgenza di ripensare l'assistenza per anziani e disabili"
209:
The person with disabilities, through his or her life project, is placed at the center of the system as
734:
628:
489:
461:
268:
236:
427:
789:
377:
369:
74:
32:
565:
830:
51:
401:
152:
545:"Europe 2020. A European strategy for smart, sustainable and inclusive growth"
84:
381:
41:
21:
683:[Three years of the "After us" Law: moving from need to rights].
364:[The right of people with disabilities to individual project].
764:"Dopo di noi: immaginare comunitĂ di destino o servizi residenziali?"
681:"Tre anni di legge sul "dopo di noi": passare dal bisogno ai diritti"
603:"Transforming our World: The 2030 Agenda for Sustainable Development"
566:"Charter of Fundamental Rights of the European Union (2000/C 364/01)"
373:
333:"Convention on the Rights of Persons with Disabilities – Articles"
362:"Il diritto delle persone con disabilitĂ al progetto individuale"
361:
15:
197:
Article 2 paragraphs 2 and 3, Ministerial Decree 23.11.2016
709:[I want rights for my daughters also "After Us"].
360:
Giuseppe Arconzo; Giada Ragone; Stefano Bissaro (2020).
46:
36:
809:[People with disabilities in the Colao Plan].
707:"Voglio diritti per le mie figlie anche "Dopo di noi""
426:
Faini, Marco; Gioga, Gianmaria; Milani, Paola (2007).
172:
Life project for "After us" (in Italian "Dopo di Noi")
148:
Convention on the Rights of Persons with Disabilities
89:
Convention on the Rights of Persons with Disabilities
157:
Charter of Fundamental Rights of the European Union
211:
190:
125:
102:
121:Unione italiana lotta alla distrofia muscolare
8:
807:"Le persone con disabilitĂ nel Piano Colao"
132:Marco Rasconi, Ci vuole un Progetto di Vita
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166:2030 Agenda for Sustainable Development
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404:[It takes a Life Project].
14:
20:
402:"Ci vuole un Progetto di Vita"
1:
142:Policies in Italy and Europe
679:Parente, Annamaria (2019).
653:Parente, Annamaria (2020).
308:"Progetto di vita - Anffas"
858:
739:www.gazzettaufficiale.it
633:www.gazzettaufficiale.it
494:www.gazzettaufficiale.it
466:www.gazzettaufficiale.it
310:[Life project].
273:www.gazzettaufficiale.it
241:www.gazzettaufficiale.it
805:De Carli, Sara (2020).
762:Bollani, Marco (2021).
711:www.editorialedomani.it
705:Marina Morelli (2021).
400:Rasconi, Marco (2018).
35:, as no other articles
221:
218:Giampiero Griffo, 2020
206:of a housing welfare.
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112:
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83:) of the person with
837:Disability in Italy
573:europarl.europa.eu
306:Anffas Nazionale.
95:Individual project
54:for suggestions.
44:to this page from
842:Disability rights
794:978-88-916-4308-7
524:eur-lex.europa.eu
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29:This article
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815:. Retrieved
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591:ec.europa.eu
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528:. Retrieved
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368:(1): 31–74.
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339:. 2015-05-14
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610:sdgs.un.org
406:welforum.it
153:Europe 2020
831:Categories
817:2021-06-18
774:2021-06-18
745:2021-06-18
717:2021-06-18
691:2021-06-18
665:2021-06-18
639:2021-06-18
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500:2021-06-18
472:2021-06-18
442:2018-01-18
412:2021-06-18
366:Le Regioni
343:2021-06-17
337:www.un.org
318:2021-06-17
312:Anffas.net
279:2021-06-17
247:2021-06-18
85:disability
59:April 2022
50:; try the
37:link to it
382:0391-7576
40:. Please
216:—
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130:—
107:—
811:Vita.it
768:Vita.it
685:Vita.it
659:Vita.it
612:. 2015.
575:. 2000.
554:. 2010.
75:Italian
792:
526:. 2010
380:
33:orphan
31:is an
606:(PDF)
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548:(PDF)
432:(PDF)
224:Notes
790:ISBN
378:ISSN
370:doi
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