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The Brain Tumour
Charity is the only national brain tumour charity to provide a variety of information and support services which allow people personally affected by brain tumours to access support online, face to face, on the phone or in printed form across the UK, regardless of tumour type, age or
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Andy Foote founded The Joseph Foote Fund in 2007 after losing his son, Joseph, to a brain tumour. The Foote family began raising funds for research into the causes and treatment of brain tumours – in its 12-year history The Joseph Foote Trust raised more than £2 million.In 1997, the UK Brain Tumour
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HeadSmart aims to educate the public and healthcare professionals about the signs and symptoms of brain tumours in children and young people, to reduce diagnosis times, to save lives and to reduce long term disability. The campaign's goal is to reduce diagnosis times to four weeks or less in line
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In 2015 the charity commissioned a research project 'Living with a brain tumour', in partnership with an independent research agency. The research investigated the lived experience of adults with a brain tumour. Two publications have results from the research:
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The Brain Tumour
Charity currently fund a portfolio of research across the UK with the aim of doubling survival and reducing long term harm through improving the understand and complexities of brain tumours, better diagnostic techniques and new treatments.
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People take part in fundraising events across the UK. Flagship events for The Brain Tumour
Charity include The Twilight Walk and #WearItOut for Bandanas for Brain Tumour Awareness Month (every March), which also help to unite the brain tumour community.
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The Brain Tumour
Charity's primary awareness campaign is HeadSmart: be brain tumour aware. HeadSmart is a multi-award-winning, UK-wide campaign based on research funded by The Brain Tumour Charity at The University of Nottingham (2003-2006).
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The
Samantha Dickson Brain Tumour Trust was started by Neil and Angela Dickson in 1996, who lost their daughter, Samantha, to a brain tumour when she was 16 years old. They had become aware of the lack of properly funded research into this
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and other influential stakeholders within the health sector, including responding to government consultations. The charity also works with like-minded organisations and networks across the UK to better understand local healthcare issues.
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To achieve these goals, the charity focuses efforts on five priority areas that the charity believes will have the biggest effect for those affected, reflected in its five-year research strategy, 'A Cure Can't Wait':
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Society was founded, which later became Brain Tumour UK.The Brain Tumour
Charity has grown rapidly since the merging, funding a diverse portfolio of research programmes, projects and clinical trials across the UK.
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The charity's support and information services are available free of charge for everyone affected by a brain tumour, those who have been diagnosed, as well as their family, friends, schools and employers.
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376:'Finding Myself in Your Hands: The Reality of Brain Tumour Treatment and Care' – this report outlined the findings related to respondents' experiences of their NHS treatment and care.
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373:'Losing Myself: The Reality of Life with a Brain Tumour' – this report demonstrated the extensive effect that brain tumours have on the daily lives of those affected.
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The charity's goals are to double survival of a brain tumour diagnosis within 10 years in the UK, and to halve the harm that brain tumours have on quality of life.
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on brain tumours. It outlined key measures that could help survival outcomes and quality of life for everyone affected by brain tumours in the UK.
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253:, as it is today, was created after the merging of Brain Tumour UK, Samantha Dickson Brain Tumour Trust and the Joseph Foote Trust in 2013.
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634:"The Brain Tumour Charity has been certified by The Information Standard as a provider of high quality health and social care information"
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Accelerate – biobanking to accelerate research progress through centralised collection of, and access to, brain tumour tissue samples.
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They also provide funding opportunities in line with the 'A Cure Can't Wait' strategy, and award these following competitive
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Understand – increasing understanding of the genetics and biology of tumour development to identify effective new treatments.
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Catalyse – translating laboratory discoveries into new and effective treatments that increase survival and quality of life.
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The charity campaigns on a range of issues that affect people affected by a brain tumour. They engage with politicians,
680:"Third Sector Excellence Awards 2013: Charity Partnership - Winner: The Brain Tumour Charity and partners: HeadSmart"
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Enhance – enhancing care and quality of life for everyone affected by a brain tumour, including patients and carers.
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The services are focused on improving life today, helping people to live their life well, with improved
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processes and assessments made by their independent Grant Review and
Monitoring Committee (GRAM).
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Diagnose – diagnosing brain tumours earlier and more accurately for both children and adults.
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770:"Women and low-income patients 'twice as likely to suffer delays in brain tumour diagnosis"
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The charity have also released manifestos ahead of the devolved nation elections in 2016.
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The Brain Tumour
Charity collaborates with a number of other organisations, including
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In 2015 the charity published its new five year strategy 'Defeating Brain
Tumours'.
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The charity works, has worked, and continues to work with a number of medical and
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889:"Scientists target children's brain tumours in £4 million research programme"
875:"Peak and The Brain Tumour Charity partner to promote brain tumour awareness"
861:"Scientists target children's brain tumours in £4 million research programme"
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They have also worked in partnership with Peak, a mobile brain training app.
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Samantha
Dickson Brain Tumour Trust, Brain Tumour UK, The Joseph Foote Trust
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Ahead of the 2015 general elections, The Brain Tumour Charity released a
789:"Caseloads may be limiting patient access to clinical nurse specialists"
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734:"HeadSmart - Using research to inform the public about brain tumours"
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560:"How The Brain Tumour Charity merger provided the key to growth"
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574:"The Brain Tumour Charity Charity Commission Registration"
546:"The Brain Tumour Charity Charity Commission Registration"
518:"The Brain Tumour Charity Charity Commission Registration"
736:. Association of Medical Research Charities. 18 July 2014
532:"Brain Tumour UK Charity Charity Commission Registration"
756:"New project announcement with The Brain Tumour Charity"
819:"Brain tumour survivors in Wales call for more support"
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and were determined to try and remedy the situation.
588:"Brain Tumour UK set to takeover Joseph Foote Trust"
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dedicated to funding research, raising awareness of
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863:. Great Ormond Street Hospital. 14 February 2016.
504:"Defeating Brain Tumours: Our Strategy 2015-2020"
945:Cancer organisations based in the United Kingdom
39:, potentially preventing the article from being
602:"Neil and Angela Dickson among those honoured"
980:Organizations for children with health issues
143:England and Wales: 1150054 Scotland: SC045081
8:
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438:Institutions that they have funded include
712:"Son's brain tumour was size of a fist..."
620:"A Cure Can't Wait, our research strategy"
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59:reliable, independent, third-party sources
903:"Children's Brain Tumour Research Centre"
636:. NHS England - The Information Standard.
338:Raising awareness, policies and campaigns
77:Learn how and when to remove this message
877:. Charity Digital News. 15 January 2015.
323:location, for both adults and children.
125:Neil Dickson, Angela Dickson, Andy Foote
53:by replacing them with more appropriate
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36:too closely associated with the subject
955:Health charities in the United Kingdom
576:. The Charity Commission. 8 Jan 2020.
548:. The Charity Commission. 8 Jan 2020.
534:. The Charity Commission. 8 Jan 2020.
520:. The Charity Commission. 8 Jan 2020.
7:
151:Fleet 27, Rye Close, Fleet, GU51 2UH
891:. The Institute of Cancer Research.
849:. Cancer Research UK. 25 July 2017.
970:Neuroscience in the United Kingdom
694:"About HeadSmart | HeadSmart"
682:. Third Sector. 26 September 2013.
356:Raising awareness of brain tumours
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648:"Support and further information"
590:. charitytimes. 28 February 2012.
975:Organisations based in Hampshire
318:Support and Information services
34:may rely excessively on sources
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940:Biomedical research foundations
905:. The University of Nottingham.
847:"Our research on brain tumours"
650:. NHS Choices. 17 October 2017.
456:Queen Mary University of London
16:British charity founded in 1996
1:
562:. charitytimes. 24 June 2015.
274:Research and research funding
484:Cancer in the United Kingdom
444:Institute of Cancer Research
430:Great Ormond Street Hospital
835:. The Brain Tumour Charity.
787:Dean, Erin (January 2016).
622:. The Brain Tumour Charity.
506:. The Brain Tumour Charity.
109:; 28 years ago
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925:HeadSmart campaign website
821:. ITV News. 3 March 2016.
464:University College London
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460:University of Birmingham
452:University of Nottingham
418:Medical Research Council
251:The Brain Tumour Charity
222:The Brain Tumour Charity
90:The Brain Tumour Charity
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805:10.7748/cnp.15.1.16.s19
793:Cancer Nursing Practice
440:Imperial College London
426:Action Medical Research
422:Children with Cancer UK
415:Marie Curie Cancer Care
134:Charitable organisation
950:Farnborough, Hampshire
201:.thebraintumourcharity
714:Express. 5 April 2016
468:University of Glasgow
140:Registration no.
833:"WearItOut campaign"
698:www.headsmart.org.uk
666:www.headsmart.org.uk
448:Newcastle University
960:Health in Hampshire
606:Basingstoke Gazette
472:University of Leeds
305:research institutes
173:Alex Lochrane (CEO)
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776:. 11 January 2016.
411:Cancer Research UK
396:Fundraising events
352:with NHS targets.
226:Charity Commission
608:. 2 January 2015.
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189:7.61 million
157:Area served
148:Headquarters
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49:Please help
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662:"HeadSmart"
181:(2014/2015)
934:Categories
490:References
381:Manifestos
269:Activities
169:Key people
67:April 2016
51:improve it
41:verifiable
799:: 16–17.
387:manifesto
343:HeadSmart
55:citations
740:11 April
718:11 April
478:See also
179:Revenue
122:Founders
246:History
230:charity
194:Website
112: (
104:Founded
45:neutral
450:, the
428:, and
259:cancer
742:2016
720:2016
470:and
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130:Type
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