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In 2011, Together for Short Lives commissioned research on the number of children and young people with life-limiting and life-threatening conditions in the UK who may require palliative care. The research shows that there are 49,000 children and young people with life-limiting and life-threatening
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In 2012 Together for Short Lives published a report called Square Table – Local learning and evaluation report which captured the findings of a national listening tour of 42 'square table' events held across
England, Scotland and Northern Ireland throughout 2011. More than 1,500 people took part in
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Together for Short Lives was developed as the new name for ACT & Children's
Hospices UK, which merged in October 2011. Prior to merger ACT and Children's Hospices UK were two UK registered charities working within children's palliative care and offering membership services to children's hospice
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charities for two years since the show's inception, benefitting in 2012 and 2014, raising money for UK children's hospices. Together for Short Lives also works internationally through its close collaboration with the
International Children’s Palliative Care Network (ICPCN) by sharing resources and
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The charity provides information and support to families and professionals working across children's palliative care. Together for Short Lives has developed a care pathway approach to delivering care and support to children and families and has published a series of resources to support this
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In 2010, the
Transition Partnership (a collaboration between Together for Short Lives, Hospice UK and the National Council for Palliative Care) working with researchers at the University of York was funded by the Big Lottery Research Programme to conduct the STEPP Project (supporting health
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The charity lobbies and raises funds for children's hospice services and voluntary sector organisations through a national fundraising scheme and corporate partnerships. Together for Short Lives raises awareness of children's palliative care and the needs of children with life-limiting and
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In
December 2014 Together for Short Lives launched an animation called We’re Having a Baby to communicate the needs of families when they hear the news of their child's diagnosis and also to reassure families that there are specialist children's palliative care services to support them.
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Fraser L K, Parslow R C, McKinney P A, Miller M, Aldridge J M, Hain R, Norman P, (2012), Life
Limiting and Life-threatening conditions in children and young people in the United Kingdom; Final Report for Together for Short Lives (Leeds). Paediatrics, Volume 129, Number 4, April 2012
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ACT was established to develop an information service for families and professionals supporting them; to develop a national network for children's palliative care and to co-ordinate statutory and voluntary services concerned with delivering palliative care to children and families.
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these events – including families of children with life-limiting and life-threatening conditions, young people who have grown up using children's palliative care services, health, social care and education professionals and other representatives from across the community.
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Together for Short Lives’ activity is informed by the needs of children and young people with palliative care need and their families, and by the experience of children's hospice and palliative care services. The charity has an established Parent Carer
Advisory Group.
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across the UK. It was established to provide a national voice for children's hospices by raising awareness, improving statutory funding of hospices, and to foster collaboration between children's hospice services and to help develop professional practice.
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Run by
Together for Short Lives, Children’s Hospice Week is the UK's only awareness raising and fundraising week for children with life-threatening and life-limiting conditions and the services, like children's hospices, that support them.
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Children's
Hospice Week 2015 focused on ‘Making every moment count’ to raise awareness of how precious time is for families caring for a seriously ill child and how services support families to make the most of their time together.
267:. Together for Short Lives’ vision is for children and young people in the UK with life-limiting and life-threatening conditions and their families to have as fulfilling lives as possible, and the best care at the end of life.
435:, Stephen Mulhern, Britain's Got Talent 2014 finalists Jack Pack and Britain's Got Talent 2015 finalist Isaac Waddington. The night culminated with a DJ set from Grammy award-winning music producer William Orbit.
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ACT (Association for
Children with life-threatening and Terminal conditions) was established in 1988 under the direction of Professor David Baum, at the Institute of Child Health, Bristol and
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They were designed to provide insight into the lives of children and their families as well as an opportunity to understand the perspective of a wide range of professionals who support them.
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and palliative care services and professionals who provide care and support to babies, children and young people with life-limiting and life-threatening conditions and their families.
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launch #WeCare247 – a campaign to highlight the round the clock care that seriously ill children require and the services, like children's hospices, that are there to support them.
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The charity runs an annual fundraising and awareness raising week called Children’s Hospice Week. Since 2011, Together for Short Lives has benefited from the proceeds of sales of
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Both ACT and Children's Hospices UK were based in Bristol, UK and had a history of working collaboratively on awareness raising and lobbying, prior to merger in 2011.
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In 2013, Together for Short Lives published the BIG Study, a two-year research project undertaken with five university partners, funded by the
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life-threatening conditions. The charity lobbies governments and influences policy for children's palliative care in all four UK nations.
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transitions for young people with life-limiting conditions: researching evidence positive practice). The research was published in 2013.
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hosted the first Together for Short Lives Midsummer Ball at Banqueting House in support of seriously ill children and their families.
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Children's Hospices UK (previously known as ACH) was established in 1998 as a national umbrella charity working with independent
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offered a message of support for Children's Hospice Week 2015 and the campaign was backed by a host of celebrities including
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Research Programme. The Study explored how well the needs of life-limited children were being met in the West Midlands.
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including a Core Care Pathway for Children with Life-limiting and Life-threatening Conditions and a Family Companion.
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ACT and Children's Hospices UK merged on 1 October 2011 to become one voice for children's palliative care in the UK.
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It offers membership and support to families and runs a UK helpline called the Together for Families Helpline.
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586:"Real stories add impact to Hurricane Media's animation for children's charity, Together for Short Lives"
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in England and Wales (1144022) and Scotland (SC044139) and is a company limited by guarantee (7783702).
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Humes hosted the night's entertainment, introducing performances from Ronnie Scott's Jazz Orchestra,
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To secure the best quality of life and best end of life care for children who will have short lives
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From February 2022, Together for Short Lives is the official charity partner of UK supermarket
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Together for Short Lives is an umbrella charity for services and professionals working across
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Together For Short Lives: 2294 Act children's hospices UK merge to become the single voice
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Together for Short Lives was launched as a new UK charity on 1 November 2011.
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information to help the children's palliative care sector across the globe.
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635:"Stars to join forces for return of ITV's charity fundraiser Text Santa"
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Together For Short Lives: TFSL new voice for children's palliative care
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Children's Hospice Week 2014 saw Together for Short Lives patrons
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services, children's palliative care professionals and families.
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606:"The X Factor Celebrity finalists release charity single"
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http://pediatrics.aappublications.org/content/129/4/e923
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Together for Short Lives' president is Professor Sir
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Suite 1b, Whitefriars, Lewins Mead, Bristol, BS1 2NT
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701:"Simon Cowell supports Children's Hospice Week"
305:is an ambassador for the charity, along with
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784:2011 establishments in the United Kingdom
109:Learn how and when to remove this message
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335:hospice for children in Oxford.
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16:British charitable organization
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392:Lobbying and awareness raising
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329:Sister Frances Dominica
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419:On 3 June 2015 Patron
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159:Children's Hospices UK
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179:(England & Wales)
174:Registration no.
309:and Lucy Watts MBE.
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43:improve this article
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32:This article
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504:Simon Cowell
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41:Please help
36:verification
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472:Louis Walsh
433:Katie Melua
333:Helen House
331:founder of
295:Mason Mount
289:DBE, FRCN,
99:August 2015
778:Categories
738:2015-09-04
712:2015-09-04
686:2021-11-15
662:2015-09-04
620:2019-12-16
591:2015-09-04
571:2015-09-04
530:References
496:Ben Hanlin
492:Dave Berry
480:Ben Haenow
412:Text Santa
279:Alan Craft
185:(Scotland)
69:newspapers
440:Morrisons
183:SC044139
168:Nonprofit
136:Formation
510:Research
429:Rochelle
215:Location
177:1144022
681:MyMorri
313:History
241:Website
194:Charity
144: (
83:scholar
425:Marvin
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657:Hello
199:Focus
90:JSTOR
76:books
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250:.org
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157:ACT,
146:2011
139:2011
62:news
252:.uk
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