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and the development of NHS care pathways. Iwan Sadler, diagnosed with DCM in 2014, felt increasingly isolated and frustrated by the lack of available information and support. In response, he launched an awareness campaign and one of the first
Facebook community pages dedicated to DCM. Myelopathy.org
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Myelopathy.org's peer-to-peer support programme, moderated by volunteers, includes over 3,000 members primarily from Canada, the USA, and the UK. Its research initiatives, like RECODE-DCM with AO Spine, engage professionals from over 60 countries. The organisation disseminates the latest evidence
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Myelopathy.org launched its new website in May 2022, providing source of contemporary and evidence-based information aimed at complementing the routine care of individuals with
Degenerative Cervical Myelopathy (DCM) and raising awareness among non-specialist healthcare professionals.
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Myelopathy.org was registered as a charity in June 2018.The organisation's charitable objectives are focused on advancing health and education in all aspects of DCM.
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Davies, Benjamin M.; Kwon, Brian K.; Fehlings, Michael G.; Kotter, Mark R. N. (February 18, 2022).
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received the Points of Light Award from the
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through its podcast "Myelopathy
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