232:. For one, it is already her third admission since last summer. They complain of painful ascites and their failure to perform the household tasks. In the same room, three women aged between 25 and 45 are admitted with extensive and very painful breast tumours. They are very embarrassed about the deformities and the smell. The nearest place offering specialist care for cancer patients and radiotherapy is 400 kilometres (250 mi) away, through a war-ridden area.
252:
an adequate way. Thereby, little or no attention is given to the broader needs in chronic illness: follow-up, counselling, information and education, involvement of the relatives, social or material support, rehabilitation. It seems that in general, chronic illness does not fit in most of the existing services, as they are designed for acute and
210:
through breast feeding. The infected mother is thus expected to only bottle feed the baby since the breast milk contains HIV. AIDS can also be further spread through un-sterilized instruments like needles, razors, knives. This mainly affects traditionalists who are exposed to such objects especially during circumcision.
260:, chronic illness is not given adequate attention or the priority it deserves. There are several reasons for this lack of priority. Some are true, and difficult to resolve, but many arguments originate from misconceptions, myths and a reluctance to face changing health patterns in developing countries."
187:
counselling and caring that involves the child. The children's own stories about their feeling and problems they meet regarding HIV/AIDS are tested and counselling shared. The importance of disclosure to the child, confidentiality and information sharing concerning the child's sero-status are analyzed.
182:
Children sick with HIV/AIDS are ostracized by family members, communities, schools and playmates who fear contracting the disease. They are denied play, stopped from going to school, used by own parents to ascertain own sero-status. Those who opt to take them up demand for blood check ups against the
251:
Unfortunately, the needs of those chronically ill are not met by far in most existing health care services. If the illness has a treatable or stabilisable cause (e.g. diabetes, or some types and stages of cancer), often the treatment is not available, not maintained for a long period or not given in
213:
There is a general belief that one can be infected during the act of deep kissing. However, according to the doctor at the center, this is only possible if the uninfected person has a sore in the mouth or if that person swallows twenty liters of saliva of the infected person. Normal kissing usually
209:
The virus can also be transmitted from mother to child. This can be before, during or after childbirth. The virus can only be transmitted to an unborn child if there is a damage to the placenta otherwise an infected mother can give birth to a healthy baby. A baby on the other hand can get infected
235:
In the next bed, an emaciated old lady has hardly been eating or drinking for the last 6 weeks because of an oesophageal tumour. In the afternoon, a 45-year-old women is found to have a locally spread tumour of the cervix. She thinks she cannot afford to go for radiotherapy, although the smelling
78:
as a response to the AIDS scourge in 1987. There was overcrowding in the
Nsambya Hospital wards; hence the opening of a separate department for AIDS patients. Rooms were eventually put up for counselling to ensure confidentiality. The very weak clients who were not getting better were visited in
82:
In 1987 a total number of 327 clients were registered. The numbers increased as years went by. Different interventions were put in place to respond to challenges that cropped up. These included the creation of outreach clinics, Behavior Change
Programs, Paediatric Counselling, Income Generating
186:
The whole situation of counselling and testing children defy the issue of making an "informed decision" for the HIV test and the professional ethics regarding confidentiality. The patient's own consent on whatever is to be done on him or her is broken since the child's care-giver handles the
183:
children's will. Children are always told lies about the kind of check up, counselling for Pre-test is always given to care-givers and not the real children, the sero-status is always discussed and known by relatives or care-givers and medical workers but not the children themselves.
90:
Aids patient Care in areas of high sero-prevalence is becoming a problem, with increasing demand on hospital bed capacity. Various innovative approaches have been tried to provide care, but cost analysis against benefits of these approaches has rarely been done.
95:
used inpatient, outpatient and outreach mobile Home Care for AIDS to provide a continuum of care since 1989. Hospital records of AIDS patients cared for and the corresponding costs were analyzed for a rough cost benefit evaluation of this approach.
134:
To date
Nsambya Home Care has more than 10,000 active clients involving children. This paper will discuss the interventions put up by a religious based organization in fighting, and caring for AIDS patients without blaming or condemning them.
206:. This still a big problem because some of the blood donated could contain the AIDS virus, but because it is still in its early stages (the window period), the blood still tests negative and then transfused into a patient.
345:. Celebrations to mark NHC's 20th anniversary coincided with the official opening of the new building complex just opposite Nsambya Hospital main gate and this was the venue for the day. The guest of honour, Cardinal
276:. However, with the completion of the new building project, there is still a shortage of funds to care for the ever increasing number of patients. This is the list of funded programmes in the country by CAFOD,
123:. In the last decade, the numerous AIDS patients have joined this group. Their main and common problem is a longstanding, progressively debilitating condition, which silently undermines their physical and
244:. He hopes he can go back to the kraal soon. In the evening, an old man arrives from a place 100 kilometres (62 mi) away because of a painful hard swelling in his upper abdomen: a gross
221:. There are major and minor symptoms. It also teaches about various ways of reducing the transmission of the HIV infection. Dr Erika Vlieghe a physician who previously worked at NHC writes *
567:
228:. She is actually recovering while receiving insulin, but how to continue the treatment at the village? Two women in their fifties are recovering from another exacerbation of
473:
407:
34:. The department offers medical and psychosocial support to people living with HIV/AIDS (PLWHAs). Established in 1987 by Miriam Duggan, it is a department of
520:
116:
285:
236:
vaginal discharge and the pain are really disturbing her. A young man is very uncomfortable with his legs swollen and knobbly because of
528:
224:"Monday morning, a rural district hospital in Uganda. A ward round through Female Ward. A 40-year-old woman has been brought in with
467:
453:
472:
USAID 1994. Initial environmental examination for the
Catholic Relief Service Food Transition Strategy Project in the Philippines.
489:
338:
On 4 December 2007, Nsambya Home Care celebrated 20 years of hard work and dedicated service to communities affected by the
87:
services, Education for life programs, AIDS sensitization programs and involvement of client volunteers in the program.
75:
50:
medications in 2004 and so far close to 2000 active patients are benefiting from treatment. It is headquartered in
38:. Since its founding, NHC has provided care and treatment services to over 15,000 clients. With support from the
510:
269:
229:
43:
161:
521:
http://www.ias2007.org/pag/PosterExhibition.aspx?presType=PE&day=25&Track=All&absCat=Adherence
358:
515:
62:, a southern suburb of Kampala. NHC is led by Maria Nannyonga Musoke, a consultant paediatrician of
237:
157:
494:
396:
366:
362:
499:
257:
256:
and for standardisable, short episode illnesses. In most programs and reports on health needs in
253:
100:
463:
449:
203:
418:
92:
63:
35:
27:
374:
346:
195:
190:"Nsambya Home Care informs people about the spread of HIV/AIDS. Maria Nannyonga said that
103:. People suffer from longstanding pain and symptoms caused by ‘incurable’ conditions like
490:
https://www.webcitation.org/5ko5NEfAv?url=http://www.geocities.com/ngoaidshot/nsambya.htm
484:
479:
47:
378:
561:
505:
429:
370:
281:
225:
128:
124:
120:
108:
84:
245:
169:
After care services to patients and provision of necessities like food every week.
543:
530:
511:
http://www.worldyouthalliance.org/i/Training%20in%20Uganda%20June%202006.swf
277:
342:
218:
147:
112:
296:
Kiyinda
Mityana Diocese Social Services Department - Sponsored by CAFOD
55:
51:
516:
http://www.case.edu/artsci/anth/documents/CeSSRA_Newsletter_July08.pdf
99:
Chronic illness is a common but very much neglected health problem in
104:
31:
289:
273:
59:
317:
Integrated
Development Activities (IDAC) – Sponsored by ActionAid
241:
191:
39:
495:
http://gateway.nlm.nih.gov/MeetingAbstracts/ma?f=102252541.html
314:
Uganda Women’s
Concern Ministry (UWCM) – Sponsored by ActionAid
500:
http://www.gateway.nlm.nih.gov/MeetingAbstracts/102256690.html
339:
311:
Kumi AIDS Support
Organisation (KASO) – Sponsored by ActionAid
268:
Nsambya Home Care is funded by a number of organisations like
199:
166:
Outreach programmes to patients and to schools and communities
151:
175:
Training volunteers and counsellors to take care of patients
305:
Ugandan Joint
Christian Council (UJCC) – Sponsored by ICCO
460:
For Whom There is No Room: Scenes from the
Refugee World
58:, Uganda. A field office of the program is located at
485:
http://www.transformafrica.org/participating-ngo.htm
480:
http://www.aegis.com/aidsline/1992/dec/M92C2355.html
79:
their homes by a doctor, a nurse, and a counsellor.
326:
Mission Moving Mountains (MMM) – Sponsored by Oxfam
506:http://www.allafrica.com/stories/200810040029.html
172:Behavioral change programmes especially in schools
568:Medical and health organisations based in Uganda
198:with an infected person. Secondly, she said the
446:Catholic Relief Services: The Beginning Years
308:Grassland Foundation – Sponsored by ActionAid
74:NHC was founded and initially managed by the
8:
217:NHC teaches about the signs and symptoms of
302:Nsambya AIDS Home Care – Sponsored by CAFOD
419:Cardinal Wamala Opens New Building at NHC
42:Relief program and in collaboration with
408:Analysis of Child Confidentiality Issues
143:Nsambya Home Care offers services like;
389:
83:Activities, Youth Forum for the youth,
320:Nsambya Home Care – Sponsored by CAFOD
448:. NY:Catholic Relief Services, 1988.
7:
14:
323:ACET – Sponsored by Christian Aid
194:is spread mainly through having
46:, the program started providing
26:) is one of the departments of
16:Department of Nsambya Hospital
1:
349:, laid the foundation stone.
214:does not carry those risks.
36:St. Francis Hospital Nsambya
30:, a faith-based hospital in
462:. NY: Paulist Press, 1995.
299:NUDIPU - Sponsored by CAFOD
178:Controlling stigmatization:
584:
397:Stigmatization in HIV/AIDS
240:. He does not know he has
329:KADP – Sponsored by CAFOD
270:Catholic Relief Services
162:opportunistic infections
44:Catholic Relief Services
430:COVID-19 and Home Care
334:Future and development
254:communicable diseases
129:socio-economic status
544:0.30167°N 32.58500°E
158:Antiretroviral drugs
540: /
258:sub Saharan Africa
202:is spread through
127:and weakens their
101:sub Saharan Africa
76:Franciscan Sisters
549:0.30167; 32.58500
476:, Washington, DC.
204:blood transfusion
160:and treatment of
20:Nsambya Home Care
575:
555:
554:
552:
551:
550:
545:
541:
538:
537:
536:
533:
432:
427:
421:
416:
410:
405:
399:
394:
238:Kaposi's sarcoma
93:Nsambya Hospital
64:Nsambya Hospital
28:Nsambya Hospital
583:
582:
578:
577:
576:
574:
573:
572:
558:
557:
548:
546:
542:
539:
534:
531:
529:
527:
526:
441:
436:
435:
428:
424:
417:
413:
406:
402:
395:
391:
386:
355:
347:Emmanuel Wamala
336:
266:
230:cardiac failure
196:unprotected sex
141:
72:
54:, a section of
17:
12:
11:
5:
581:
579:
571:
570:
560:
559:
524:
523:
518:
513:
508:
503:
497:
492:
487:
482:
477:
470:
458:Egan, Eileen.
456:
444:Egan, Eileen.
440:
437:
434:
433:
422:
411:
400:
388:
387:
385:
382:
381:
380:
376:
372:
368:
364:
360:
354:
353:External links
351:
335:
332:
331:
330:
327:
324:
321:
318:
315:
312:
309:
306:
303:
300:
297:
265:
262:
180:
179:
176:
173:
170:
167:
164:
155:
140:
137:
121:kidney failure
71:
68:
48:antiretroviral
15:
13:
10:
9:
6:
4:
3:
2:
580:
569:
566:
565:
563:
556:
553:
522:
519:
517:
514:
512:
509:
507:
504:
501:
498:
496:
493:
491:
488:
486:
483:
481:
478:
475:
471:
469:
468:0-8091-0473-3
465:
461:
457:
455:
454:0-945356-00-5
451:
447:
443:
442:
438:
431:
426:
423:
420:
415:
412:
409:
404:
401:
398:
393:
390:
383:
379:
377:
375:
373:
371:
369:
367:
365:
363:
361:
359:
357:
356:
352:
350:
348:
344:
341:
333:
328:
325:
322:
319:
316:
313:
310:
307:
304:
301:
298:
295:
294:
293:
291:
287:
283:
282:Christian Aid
279:
275:
271:
263:
261:
259:
255:
249:
247:
243:
239:
233:
231:
227:
226:diabetic coma
222:
220:
215:
211:
207:
205:
201:
197:
193:
188:
184:
177:
174:
171:
168:
165:
163:
159:
156:
153:
149:
146:
145:
144:
138:
136:
132:
130:
126:
125:mental health
122:
118:
114:
110:
109:heart disease
106:
102:
97:
94:
88:
86:
85:Pastoral care
80:
77:
69:
67:
65:
61:
57:
53:
49:
45:
41:
37:
33:
29:
25:
21:
525:
459:
445:
425:
414:
403:
392:
337:
267:
250:
246:liver tumour
234:
223:
216:
212:
208:
189:
185:
181:
142:
133:
98:
89:
81:
73:
23:
19:
18:
547: /
148:HIV testing
535:32°35′06″E
532:00°18′06″N
439:References
139:Activities
278:ActionAid
200:HIV virus
562:Category
343:pandemic
219:HIV/AIDS
113:diabetes
264:Funding
70:History
56:Kampala
52:Nsambya
466:
452:
105:cancer
32:Uganda
502:- 12k
474:USAID
384:Notes
290:Oxfam
274:CAFOD
154:count
60:Ggaba
464:ISBN
450:ISBN
288:and
286:ICCO
272:and
242:AIDS
192:AIDS
150:and
119:and
117:COPD
40:AIDS
340:HIV
152:CD4
24:NHC
564::
292:.
284:,
280:,
248:.
131:.
115:,
111:,
107:,
66:.
22:(
Text is available under the Creative Commons Attribution-ShareAlike License. Additional terms may apply.