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The idea behind establishing such an entity came about when
President of the foundation met few kidney and thalassemia patients in 1991. Their inappropriate living and medical condition forced her to travel to provinces to collect first hand information and get herself more familiarized with
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During these years, the
Foundation has expanded its coverage from patients with Dialysis, Thalassemia and Hemophilia to other patients with severe illnesses : Cancer, M.S., Kidney transplants, Diebetic and E.B. due to its epidemic and high cost of treatments.
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patients. Due to the following prevailing conditions for patients, she had to report the result of fact finding missions to her father and asked for his immediate intervention:
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Gift payment of EESAAR for promotion of culture of transplant and in appreciation of kidney donors ( council of minister decree 1995)
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Establishing personal insurance coverage for cancer, M.S. and diabetic patients (Parliament decree 2006)
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Free of charge treatment of thalassemi-Hemophili-Dialysis patients ( council of M. decree (1996)
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entity, started its activities in May 1995 with the support of H.E.
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Lack of attention in addressing the issue by
Ministry of Health
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Prevention of thalassemic child birth ( c. of M. decree 1996)
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center for research, training and prevention of cancer
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and Dr. Fatemeh
Rafsanjani and other philanthropists.
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Member of
Thalassemi International Federation (TIF)
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157:High epidemic of such disease in the country
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134:The Charity Foundation for Special Diseases
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63:"Charity Foundation for Special Diseases"
160:Expensive treatment and lack of remedies
237:Most important international activities
195:Sharq specialized medical center (2006)
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148:History and Establishment
258:Few Important activities
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104:October 2014
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42:Please help
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