161:." In other words, medical professionals are typically taught to look out for more-common ailments rather than uncommon or rare diagnoses. The EDS and HSD community have adopted the zebra because "sometimes when you hear hoofbeats, it really is a zebra." The Ehlers–Danlos Society is aiming "towards a time when a medical professional immediately recognizes someone with an Ehlers–Danlos syndrome or hypermobility spectrum disorder."
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The Ehlers–Danlos
Society's EDS and HSD Global Registry and Repository enables the gene search for hypermobile EDS and facilitates research into the frequency of related symptoms and other conditions. It looks to map the experiences of those living with EDS and HSD globally, and discover new forms of
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The Ehlers–Danlos
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The Ehlers–Danlos
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Hypermobility is one of the main symptoms of hypermobility spectrum disorders (including some types of Ehlers–Danlos
Syndrome)
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dedicated to patient support, scientific research, advocacy, and increasing awareness for the
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On May 1, 2016, the EDNF became The Ehlers–Danlos
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212:"Ehlers-Danlos Syndrome: More Than Just Stretchy Skin and Bendy Joints"
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International patient advocacy and support organization
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335:. National Institutes of Health. Archived from
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407:Nicoletta, Lanese (9 October 2019).
210:Miller, Anna Medaris (2016-11-11).
280:"Local woman raises EDS awareness"
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409:"What Is Ehlers-Danlos Syndrome?"
253:O'Dell, Emily Jane (2017-06-05).
37:Ehlers–Danlos National Foundation
472:from the original on 2017-10-19
135:hypermobility spectrum disorder
439:. May 14, 2013. Archived from
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278:Jeffers, Barb (2017-05-01).
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329:"Ehlers–Danlos syndromes"
308:The Ehlers–Danlos Society
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95:Key people
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216:U.S. News
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42:Formation
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173:History
104:Website
68:Purpose
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