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antiviral drugs at approximately the same time as the H1N1 virus became less prevalent. However, due to the nature of social media as user-generated and unregulated, deciphering between what is relevant versus irrelevant material can blur generalizations and facts. Along with this, people are wavering and unreliable with when and what they post about on social media. With that, social media is an unstable variable which, in order to become standardized, would require great expense to create measures in which it would become feasible to make valid generalizations about. To elaborate using the example of
Twitter, information on sickness can change meaning in a connotative sense. For example, if a user tweets about popular pop artist Justin Bieber saying they have “Bieber Fever,” this is very apparently not a real sickness, but a faux sickness based on the popularity of an artist. This creates issues in organizing information, requiring complex algorithms that can analyze the contours of these social meanings. Nonetheless, a recent study noted that studies focusing on the use of Youtube to detect outbreaks only had a twenty to thirty percent range of error, leading researchers' to continue looking into the prospect of social media as a force for change in disease outbreak.
317:, using the Internet to post private information about an individual or organization as a means of attack against the entity. Common information that can be leaked can be anything from a past discretion, home address, or even social security number of the victim. This information could be freely available on the internet for the attacker to access and publicize. This differentiates it from other types of information leaks, since the information is simply being brought to the forefront of the public's viewing. In other words, the public information being leaked could be found freely by other parties even if it was not exposed in a more public light. The term "doxing" comes from the origins of document, first used in 2001 with the infamous hacker collective called
81:. With added awareness of the locations of users, an aspect of greater socialization and interconnectivity emerges within both the digital and tangible world. Since the online information highway collects and stores information more permanently than the physical world, many interactions amongst online users can last much longer than physical ones. Since users can control the information and locations in which they associate themselves, they can in part surveil themselves and others to an extent. This is participatory surveillance within a web-based paradigm.
118:, interest in activist-deployed and peer surveillance has been increasing. Whereas the average person may not fully understand the surveillance programs of larger collectivities, people are drawing upon surveillance tools themselves in interpersonal relationships and in attempts to bring about institutional accountability. Some researchers assert that by using these technologies of surveillance, the same ones used by companies to track consumer tendencies, the public is essentially feeding into practices of their own personal surveillance.
229:, Knowledge (XXG) proved to be ineffective in determining whether the site was helpful in understanding the outbreak. Moreover, users who gained opinions on the outbreak from news sources were similar to the Knowledge (XXG) edits and reactions. Similarly, the PubMed responses were consistent with that of the Knowledge (XXG) and Twitter responses. Overall, a significant amount of information was gathered from these sources, deeming these sites to be useful in documenting disease and public reaction.
321:. With today's current laws, most legislation pertaining to cyber threats and attacks are rooted in the 1990s, when the Internet was just developing. Due to information being stored online, doxing does not adhere to standard rights of privacy. Constitutionally, individuals should have the right to disclose or not disclose information, while at the same time being able to make decisions about privacy. The
293:
researchers altogether ignore the idea of privacy when analyzing methods of participatory surveillance. More so, from a social media perspective, some researchers claim that by openly sharing information with others, this cannot be deemed a breach of privacy. However, a few researchers on the topic mention breaches of privacy within the spheres of both digital media studies and infodemiology.
45:, an individual has the power to find information both freely or non freely given about the individual being searched. Issues of privacy emerge within this sphere of participatory surveillance, predominantly focused on how much information is available on the web that an individual does not consent to. More so,
84:
In addition to this, participatory surveillance has begun to be referred to as a tool for ecological field research. Currently, it is extremely difficult to detect disease outbreaks in enough time to prepare people for the outcomes. Often, in hard to reach areas such as the Arctic, researchers cannot
301:
Infodemiology relies on users' information to analyze health patterns and public health concerns. However, the legality behind using other people's information without their consent can cause serious ethical privacy violations. However, limitations such as individual privacy concerns and unreliable
242:
In hard to access regions such as the Arctic and rural Canada, researching ecological processes and disease spread can be difficult without constant monitoring. Indigenous populations have become a key aspect in understanding the spread of disease, due to their proximity and connection to the land.
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which established the "true threat" exception. This exception established a breach of free speech rights whenever the content of the speech maliciously invades privacy interests. However, this exception may only work in some doxing situations, where the court measures the extent of the offense and
155:
An emerging term within social media based participatory surveillance, infodemiology refers to the use of digital based applications or surveys, to better track disease patterns. Information people search for related to health as well as what the public says on digital-based platforms makes up the
187:
The speed at which social media reveals public thought and trends is about two weeks faster than that of standardized disease surveillance through the proper health-related institutions. An example of social media reactions related to the H1N1 virus include an increased lack of discussion around
292:
As digital technology advances with many dangers associated to privacy, individuals are attempting to be more accountable when meeting others. Background check websites and search engine sources reveal just how many people attempt to find information on another person, whatever the reason. Many
183:
outbreak in 2009 was analyzed through
Twitter reactions and responses in order to investigate these areas of thought. After analyzing and comparing tweets through different severities of the H1N1 outbreak, the researchers posited that tweets can be a reliable estimate in understanding disease
126:
One argument towards social media based participatory surveillance is participatory surveillance within social digital media schemas work to emphasize the power that comes from monitoring what is surveilled of themselves in the context of others rather than being constituted as an invasion of
283:
Inuit communities, the researchers were able to detect the outbreak of avian cholera in thirteen locations from 2004 to 2016. The Inuit peoples were able to keep a closer eye on death rates of the Common Eider due to their daily routines and subsistence on the duck.
168:, Vigilant-e, and SaĂşde na Copa. These sites usually gather information through mapping similar symptoms of users. Some sites, such as InfluenzaNet, provide incentives for users to continue tracking their symptoms or encourage their friends to start tracking theirs.
131:, the artistic narrative associated with presenting lives, creates a fake reality in which people can contextualize, therefore keeping the reality of some aspects of an individual or collectives' lives still privatized. This thinking can be transposed to other
259:, a species of sea duck, was being tracked to understand an increase in mortality from the disease. The Inuit were the first to report the increase in deaths, due to their reliance on Common Eider for meat, feathers, and eggs. With support from the
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views and edits all provided information into when the disease was received, the concerns associated with the outbreak, and popular opinion on the disease. Interestingly, most of the
Twitter posts related to Chikungunya were highly guided by
89:
know the ecology of the land better and how to reach overlooked locations of research. Researchers can use these people as rural surveyors, capturing instances of disease outbreak much quicker and easier than the researchers themselves.
203:
at the beginning of 2007. The outbreak caused great social concern, therefore causing a plethora of social media reactions to emerge. Using an infodemiological approach, the sites where the outbreak was recorded, specifically
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fabric of this field of study. Coming about in 2002, infodemiology measures common social media platforms, disease and illness related websites, search engine information, and any other online user-related health data.
77:, where users can control what information is available to other users of the platform. Users can now digitally attach people to locations, without having to physically be within the location, a concept coined as
61:
are used to gain greater accessibility to causes of disease outbreak. By using these communities, disease outbreak can be spotted earlier than through traditional means or healthcare institutions.
147:
focus on the aspects of what real users want to show to the digital audience. It is privatized in the respect that users control what they allow others to see causing them to feel liberated.
325:
protects the right to free speech, but doxing uniquely uses information available to the public, leading some 'doxers' to claim that they are simply exercising their First
Amendment rights.
446:"Avian Cholera Emergence in Arctic-Nesting Northern Common Eiders: Using Community-Based, Participatory Surveillance to Delineate Disease Outbreak Patterns and Predict Transmission Risk"
73:, an increase in online socializing and interaction emerged, largely from the function of social media platforms. Social media platforms originally emerged within the context of the
179:, a user-generated platform for social media, can effectively help track users’ thoughts and opinions on diseases as well as help track disease at a greater rate. For example, the
795:"Infodemiology and Infoveillance: Framework for an Emerging Set of Public Health Informatics Methods to Analyze Search, Communication and Publication Behavior on the Internet"
322:
851:"Participatory Surveillance Based on Crowdsourcing During the Rio 2016 Olympic Games Using the Guardians of Health Platform: Descriptive Study"
972:"Public Reaction to Chikungunya Outbreaks in Italy—Insights from an Extensive Novel Data Streams-Based Structural Equation Modeling Analysis"
736:
49:
researchers can study social-media based patterns to decrease the time it takes to detect an outbreak, an emerging field of study called
106:
refers to surveillance-based challenges to power imbalances between individuals and institutions. Although state and industry
53:. Within the realm of ecological fieldwork, participatory surveillance is used as an overarching term for the method in which
180:
542:"The Use of Twitter to Track Levels of Disease Activity and Public Concern in the U.S. during the Influenza A H1N1 Pandemic"
727:
Gilliom, John; Monahan, Torin (2012). "Everyday resistance". In Ball, Kirstie; Haggerty, Kevin D.; Lyon, David (eds.).
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information cause participatory digital information to sometimes be inaccurate and hard to differentiate from truth.
29:
and ecological field studies. In the realm of media studies, it refers to how users surveil each other using the
115:
74:
482:"Social Media and Internet-Based Data in Global Systems for Public Health Surveillance: A Systematic Review"
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132:
1128:
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based health-related sites have also been gaining traction in infodemiology. Some include Flu Near You,
1034:"Web-Based Infectious Disease Surveillance Systems and Public Health Perspectives: a Systematic Review"
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gain an intensive look into the subject of disease outbreak closely enough to gain accurate results.
330:
103:
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128:
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54:
601:"Public Health for the People: Participatory Infectious Disease Surveillance in the Digital Age"
905:"Social Media and Outbreaks of Emerging Infectious Diseases: A Systematic Review of Literature"
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1096:"The Doxing Dilemma: Seeking a Remedy for the Malicious Publication of Personal Information"
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has received substantial public attention in the wake of disclosures like those made by
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is community-based monitoring of other individuals. This term can be applied to both
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virus, associated with moderate to severe skin rashes and joint pain, spread to
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661:"The Work of Watching One Another: Lateral Surveillance, Risk, and Governance"
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Monahan, Torin (2006). "Counter-surveillance as
Political Intervention?".
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rather than empirical investigations, leading to non-usable data. Using
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since they are rarely turned off. This poses a greater security risk.
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759:"Webcams, TV Shows and Mobile Phones: Empowering Exhibitionism"
954:
328:
The only exception to First
Amendment rights came about from
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privacy, or disempowerment. Within the visual discourse of
406:"Online Social Networking as Participatory Surveillance"
956:. Amsterdam: Elsevier/Academic Press. pp. 42–66.
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247:populations' observations during the outbreak of
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251:helped identify specific zones of infection in
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69:Towards the beginning of the development of
729:Routledge Handbook of Surveillance Studies
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952:Syed-Abdul, Shabbir; et al. (2016).
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540:Signorini, Alessio; et al. (2011).
444:Iverson, Samuel A.; et al. (2016).
849:Neto, Onicio Leal (September 3, 2019).
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909:American Journal of Infection Control
844:
842:
840:
7:
799:Journal of Medical Internet Research
16:Community-based monitoring of others
970:Mahroum, Naim; et al. (2018).
855:JMIR Public Health and Surveillance
14:
1032:Choi, Jihye; et al. (2016).
164:, Guardians of Health, AfyaData,
135:media technologies. In contrast,
41:, and other web-based methods of
731:. Routledge. pp. 405–411.
605:Emerging Themes in Epidemiology
336:the reactions from the attack.
1094:MacAllister, Julia M. (2017).
903:Tang, Lu; et al. (2018).
404:Albrechtslund, Anders (2008).
1:
997:10.1371/journal.pone.0197337
567:10.1371/journal.pone.0019467
33:. Either through the use of
793:Eysenbach, Gunther (2009).
599:WĂłjcik, Octawia P. (2014).
1155:
921:10.1016/j.ajic.2018.02.010
763:Surveillance & Society
665:Surveillance & Society
75:online information highway
1051:10.1186/s12889-016-3893-0
706:10.1080/10350330601019769
659:Andrejevic, Mark (2002).
480:Velasco, Edward (2014).
116:National Security Agency
776:10.24908/ss.v2i2/3.3374
757:Koskela, Hille (2002).
498:10.1111/1468-0009.12038
463:10.5751/ES-08873-210412
618:10.1186/1742-7622-11-7
181:H1N1 virus (swine flu)
678:10.24908/ss.v2i4.3359
423:10.5210/fm.v13i3.2142
356:Search engine privacy
233:Ecological field work
223:search engine queries
27:digital media studies
255:. Specifically, the
227:mediation technology
145:Surveillance webcams
133:socially constructed
104:Counter-surveillance
99:Counter-surveillance
988:2018PLoSO..1397337M
558:2011PLoSO...619467S
450:Ecology and Society
331:Cohen v. California
139:is associated with
1100:Fordham Law Review
129:reality television
87:Indigenous peoples
1038:BMC Public Health
812:10.2196/jmir.1157
738:978-1-138-02602-5
486:Milbank Quarterly
243:For example, the
192:Chikungunya virus
137:ambient awareness
108:mass surveillance
59:rural communities
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257:Common Eider
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35:social media
22:surveillance
19:
18:
1044:(1): 1238.
492:(1): 7–33.
261:Cape Dorset
208:, Twitter,
197:Chikungunya
166:FluTracking
141:cell phones
122:Empowerment
1118:Categories
1106:(5): 2451.
805:(1): e11.
382:References
184:patterns.
172:H1N1 virus
114:about the
79:geotagging
55:indigenous
319:Anonymous
273:Kangirsuk
1070:27931204
1016:29795578
976:PLOS ONE
939:29628293
887:32254042
831:19329408
714:17875607
637:24991229
586:21573238
546:PLOS ONE
516:24597553
366:Swatting
340:See also
281:Ivujivik
43:tracking
31:internet
1139:Privacy
1061:5146908
1007:5968406
984:Bibcode
930:7115293
878:7175192
822:2762766
769:(2/3).
628:4078360
577:3087759
554:Bibcode
507:3955375
269:Aupaluk
265:Iqaluit
177:Twitter
71:Web 2.0
65:History
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306:Doxing
279:, and
216:, and
206:PubMed
710:S2CID
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245:Inuit
201:Italy
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733:ISBN
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582:PMID
512:PMID
214:News
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1002:PMC
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