84:
39:
35:
26:. The registries provide a service to doctors for identification, surveillance and management of families and individuals with high
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192:"Guidelines for the surveillance and management of familial adenomatous polyposis (FAP): a world wide survey among 41 registries"
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80:, and use of registry data has resulted in improved treatment and reduced mortality from polyposis-related colorectal cancer.
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113:
77:
31:
23:
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software for collecting and processing cancer registry data compliant with national standards established by
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27:
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F.A.P.A. Belgian
Familial Adenomatous Polyposis and Lynch Syndrome Non-Profit Organization
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and regulators to understand and address the burden of cancer more effectively.
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65:
57:
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112:
Steve Atanas Stavro
Familial Gastrointestinal Cancer Registry (
143:
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Foundation, St Mark's
Hospital, Middlesex, United Kingdom)
119:
The Johns
Hopkins Hereditary Colorectal Cancer Registry (
85:University of Texas M. D. Anderson Cancer Center
8:
19:exists for the purpose of understanding the
40:Centers for Disease Control and Prevention
36:Hereditary Non-Polyposis Colorectal Cancer
182:
190:Vasen, null; Bülow, null (July 1999).
60:registries have been used in numerous
134:St Mark's Hospital Polyposis Registry
7:
103:Some of the registries include: -
14:
208:10.1046/j.1463-1318.1999.00050.x
121:Johns Hopkins School of Medicine
42:of the United States provides,
171:Familial Adenomatous Polyposis
156:Singapore Polyposis Registry (
32:Familial Adenomatous Polyposis
24:familial adenomatous polyposis
1:
146:(F.A.P.A., Brussels, Belgium)
116:, Toronto, Ontario, Canada)
87:maintains an international
285:
158:Singapore General Hospital
93:hereditary colon cancer
123:, Baltimore, MD, USA)
17:Polyposis registries
114:Mount Sinai Hospital
52:health professionals
264:Genetics databases
196:Colorectal Disease
138:St Mark's Hospital
89:list of registries
74:colorectal cancer
28:colorectal cancer
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259:Gastroenterology
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242:
240:
238:
187:
62:academic studies
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21:genetic disease
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11:
5:
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202:(4): 214–221.
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107:North America
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48:Registry Plus
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38:(HNPCC). The
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235:. Retrieved
199:
195:
185:
160:, Singapore)
102:
82:
56:
44:royalty-free
16:
15:
91:related to
76:related to
253:Categories
177:References
99:Registries
64:to assess
34:(FAP) and
30:risk from
216:1462-8910
70:mortality
66:morbidity
58:Polyposis
269:Oncology
232:41073087
224:23577809
165:See also
237:15 May
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222:
214:
128:Europe
228:S2CID
239:2022
220:PMID
212:ISSN
151:Asia
83:The
68:and
204:doi
78:FAP
72:of
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226:.
218:.
210:.
198:.
194:.
95:.
46:,
241:.
206::
200:1
136:(
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