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repository for analysis and feedback. The data is used to determine stroke care performance in real-time so that hospitals can monitor their own performance and compare themselves to other institutions. The current SPIRIT module focuses on collecting data from Stroke
Prevention Clinics and, in development, is the Acute Care SPIRIT module that will allow sites to enter data on their acute stroke patients including patients treated with Telestroke. All data elements included in SPIRIT were derived from the Canadian Stroke Quality of Care Study and the Stroke Canada Optimization of Rehabilitation through Evidence project, which identified performance measures through a series of national consensus panels on stroke care delivery across parts of the continuum (acute care, secondary prevention, rehabilitation, telestroke).
200:); healthcare providers; and stroke survivors. The collected data focus on time intervals between stroke onset and the delivery of care including thrombolysis, and include information on patient demographics, stroke type, stroke risk factors, premorbid conditions, stroke severity, brain imaging, treatments (including medications), and the utilization of stroke protocols/units.
168:, permitting the collection of patient data without consent for the purposes of improving the provision of stroke care. Since coming under the governance of the Institute for Clinical Evaluative Sciences in 2011, the Registry is no longer a "prescribed person" as it comes under ICES's status of a "prescribed entity".
95:, published as a website. In 2011, they released "The Quality of Stroke Care in Canada", a report that examined stroke care in Canada. Based on an audit of hospitals across Canada, the study looked at the quality of stroke care provided in emergency response, in-hospital care and in rehabilitation and recovery.
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Given that the data are collected from a select group of hospitals, a significant limitation of the RCSN is that the results may not be generalizable to the entire population of patients with acute stroke. To obtain population-based stroke data, a supplemental data collection is undertaken biannually
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admissions and emergency visits. Following hospital discharge, the study nurse reviews the patient's chart and enters the data into a touchscreen notebook computer using specialized software designed to increase data completeness and accuracy. Stripped of personal identifiers, encrypted data are then
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The registry initially required informed patient consent for complete data collection and follow up interviews. However, this proved to be costly and resulted in a non-representative sample of patients This finding was of great importance in informing the debate around the need for patient consent
204:— the Ontario Stroke Audit (OSA). Using the RCSN case record form and software, the OSA collected data on a random sample of all stroke and TIA patients presenting to all acute care hospitals in Ontario. Cases are determined retrospectively using appropriate International Classification of Disease (
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By linking the data elements collected by SPIRIT to performance measures, continuous evaluation of provincial and national stroke care initiatives can occur. The data collected by SPIRIT can be used to inform stroke teams, administrators, provincial ministries of Health and other stakeholders to
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was established in 2001 to allow for the measurement and monitoring of stroke care delivery and outcomes in
Canadian patients at participating institutions, and to serve as a rich clinical database for investigator-initiated research projects. It is funded by the Canadian Stroke Network and the
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SPIRIT (Stroke
Performance Indicators for Reporting, Improvement & Translation), is a web-based RCSN Stroke Registry that enables stroke-care providers the opportunity to enter data on stroke patients at the point of care in a timely manner. Data is securely transmitted to a central data
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Each year the CSN works in partnership with the
Canadian Stroke Consortium and the Heart and Stroke Foundation of Canada to host the Canadian Stroke Congress. This annual Congress brings together nearly a thousand delegates from various disciplines, including physicians, nurses, students and
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is a not-for-profit, collaborative effort, with more than 100 researchers at 24 universities across Canada. It began in 1999, with $ 4.7 million in funding from the federal government. It is governed by a board of directors and has its headquarters at the
University of Ottawa.
129:. The CSN also created a website to inform Canadians about sodium content in food. The website called Sodium 101. A Sodium 101 app, created by the CSN, is available for the iPhone and iPad to further help people track their sodium consumption.
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for participation in clinical registries and anonymous databases. As a result of this finding, many jurisdictions now waive the requirement for informed consent for these purposes. In 2005, it became a “prescribed entity” under
Ontario's
188:) presenting within 14 days of stroke onset to a participating hospital are included in the registry. Case ascertainment is achieved prospectively by having dedicated nurse-coordinators keep daily logs of all new stroke /
155:. In 2011, the governance of the RCSN was transferred from the Canadian Stroke Network to the Insititue for Clinical Evaluative Sciences and the name of the registry was changed to the Ontario Stroke Registry.
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research literature available. They also continue to enhance StrokEngine, a Web-based educational tool which offers an "A to Z" listing of every stroke rehabilitation intervention currently available in Canada.
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rehabilitation specialists. The inaugural
Congress was held in Quebec City, Quebec in 2010, and was in Ottawa, Ontario the following year. The 2012 Congress will be hosted in Calgary, Alberta.
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The
Canadian Stroke Network was involved in the creation of the National Stroke Nursing Council in 2005, which brings together stroke nurses across Canada to improve training and development.
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The content was decided after a series of meetings with many stakeholders including researchers; representatives from ministries of health and nonprofit stroke agencies (including the
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improve the quality of stroke care delivery. It will also facilitate coordination of knowledge translation and quality improvement projects across Canada.
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consumption. The
Network has publicized findings from studies involving CSN researchers and, with its partners, has successfully urged
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263:"Impracticability of informed consent in the Registry of the Canadian Stroke Network" Tu et al. NEJM 350:1414-1421, 2004
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sent for analysis via telephone to a central data server at the
Institute for Clinical Evaluative Sciences in Toronto.
208:), 10th revision, Clinical Modification diagnostic codes for stroke (I60, I61, I63, I64, and G45, excluding G45.4).
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The Canadian Stroke Network is a national leader in raising awareness about the health risks of excessive
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Ontario Stroke Registry (formerly the Registry of the Canadian Stroke Network (RCSN))
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The CSN wrote a book to support people living with stroke. The book, titled
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469:"Home - 2017 Canadian Stroke Congress - 2017 Congrès canadien de l'AVC"
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All consecutive patients with a presumed diagnosis of acute stroke or
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Tu J et al. New England Journal of Medicine 2004;350:1414-1421
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2017 Canadian Stroke Congress - 2017 Congrès canadien de l'AVC
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is the publication disseminated and funded by the Network.
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Canadian Best Practice Recommendations for Stroke Care
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Evidence-based Review of Stroke Rehabilitation (EBRSR)
100:Getting on with the Rest of your Life After Stroke
502:Medical and health organizations based in Ontario
60:The CSN currently funds four themes of research:
377:"Canadian Stroke Best Practice Recommendations"
268:Evidence-based Review of Stroke Rehabilitation
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48:CSN researchers are involved in writing the
273:The Registry of the Canadian Stroke Network
52:, a resource that provides a review of the
27:) is a non-profit healthcare organization.
16:Canadian non-profit healthcare organization
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253:Institute for Clinical Evaluative Sciences
166:Personal Health Information Protection Act
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142:Registry of the Canadian Stroke Network
258:Heart and Stroke Foundation of Canada
198:Heart and Stroke Foundation of Canada
125:to include information about salt in
89:Heart and Stroke Foundation of Canada
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395:The Quality of Stroke Care in Canada
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248:Networks of Centres of Excellence
87:The CSN, in partnership with the
73:Post-stroke repair and recovery
400:(Report). 2011. Archived from
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231:The Ontario Stroke Registry)
180:(including ischemic stroke,
67:Optimizing acute stroke care
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381:www.strokebestpractices.ca
153:Ontario Ministry of Health
190:Transient ischemic attack
178:Transient ischemic attack
159:Privacy and Data Security
300:Canadian Stroke Strategy
290:Canadian Stroke Congress
236:Canadian Stroke Network)
182:intracerebral hemorrhage
133:Conferences and meetings
70:Minimizing stroke damage
186:subarachnoid hemorrhage
37:Canadian Stroke Network
21:Canadian Stroke Network
341:"Home - Stroke Engine"
435:. CSN. Archived from
433:"Stroke Nursing News"
361:. CSN. Archived from
325:. CSN. Archived from
78:Training and outreach
54:stroke rehabilitation
507:Stroke organizations
421:. 19 September 2013.
91:, also produces the
419:"Life After Stroke"
323:"About The Network"
127:Canada's Food Guide
107:Stroke Nursing News
278:2006-05-27 at the
241:2021-04-14 at the
285:Life After Stroke
64:Preventing stroke
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359:"Research"
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295:Sodium101
276:Archived
239:Archived
44:Research
212:SPIRIT
184:, and
119:sodium
113:Sodium
405:(PDF)
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31:About
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19:The
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