62:, which is highly penetrant) may justify special considerations for genetic exceptionalism, in that individuals with a high risk for developing this condition may face a certain amount of discrimination. However, for most common human health conditions, a specific genetic variant only plays a partial role, interacting with other genetic variants and environmental and lifestyle influences to contribute to disease development. In these cases, genetic information is often considered similarly to other medical and lifestyle data, such as smoking status, age, or
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without involving any medical professionals, but to obtain information about their genetic profile might require an order from a physician and expensive counseling sessions. Disclosure of an individual's genetic information or its meaning, such as telling a woman with red hair that she has a higher
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There is ongoing debate over whether or when certain genetic information should be considered exceptional. In some cases, the predictive power of genetic information (such as a risk for a disease like
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from individuals, their families, their employers, and the government. The approach builds upon the existing protection required of general health information provided by such laws as the
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That policy approach has been taken by state legislatures to safeguard individuals' genetic information in the
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Includes a state-by-state summary table on genetic privacy laws, but information is not being updated.
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is special and so must be treated differently from other types of medical data or other
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UC Berkeley Halts
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risk of skin cancer, has been legally restricted in some places, as providing
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For example, patients are able to obtain information about their
119:"Genetic exceptionalism. Too much of a good thing?"
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Health
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117:Evans, James P; Burke, Wylie (July 2008).
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100:Ray, Turna. 18 August 2010.
185:. March 2008. Archived from
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105:Pharmacogenomics Reporter
179:"Genetic Privacy Laws"
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